Is keratoconus hereditarily linked to EDS?

[mommabutler]

My son has Keratoconus, so does my mother. I believe it was passed on from my Mother, although my optomitrist said there is no proof that it is hereditary. In some online information its says that it is? I also thought is was linked to EDS? Who do I belive? Anyway, My mother’s stabilized on it’s own, my sons did not. Last year he was told that his was continuing to progress and that they did not know if it would stabilize and that he might possibly need corneal transplants in the near future. He was encouraged to get “Corneal cross linking & Intacs” while he still had time. This all happened before I suspected EDS. He is doing great and his vision has improved so much. He is now able to wear soft contacts. I was wondering If Dr. Dianna knows about any studies or outcomes of EDS patients who have had this done. Other than flat feet and bad eyes he still seems ok otherwise, but he is only 21. I don’t have a diagnosis yet but with what seem to be so many collagen based issues in my family it would be surprising if we did not have it. My other son is Color blind is that linked to EDS?
Thank you
Rebecca

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