May 26, 2012 at 12:16 am #200
Hey there, I’m hoping that what I am about to describe sounds familiar to someone or if someone knows of someone else who has these similar problems with there skin.
I’ve been having a lot of trouble with my skin for quite a while now. I’m a male and my skin is very soft and smooth as if I had a woman’s skin(no offense to any women out there). It’s very fragile and I seem to be able to get stretch marks as if I am a pregnant woman. I’m not gaining or losing any weight and I’ve had some saliva cortisol tests that have come back ok, ruling out anything hormonal at this time. I’ve been to Dermatologists and they tell me to go to Endocrinologists and they tell me that they don’t know what is going on with my body or fail to explain why I keep getting stretch marks. I’m not taking prednisone or steriods, so it’s not that either. I feel as though I am a freak and I don’t know what to do anymore. I explained my story to someone on a medical site and they said something about possibly having Ehlers Danlos Syndrome. Does anyone here have similar issues with there skin where they are developing a lot of stretch marks for no reason?May 26, 2012 at 11:07 am #2223PrettytiredParticipant
I don’t have this particular issue, but I’ve read that stretchy, velvety skin is common in EDS. I did develop stretch marks but it was during rapid weight gain so I expected it. Sorry I’m not more help, maybe someone else here is experiencing this issue. You said you had some saliva cortisol testing done, what all hormones were checked? And make sure you get copies of the reports. Experience has shown me that they often call to say ‘your labs are normal’, when in fact they aren’t. Also, have you been diagnosed with EDS, or anything? Or still trying to fit the pieces together?
I do, however, have other skin issues. Over the last 2 years, I’ve noticed my skin aging rather quickly… more wrinkles and almost a ‘shine’ to my skin that I never had. I’m only 28, fyi. I’ve read that a hormone imbalance, particulary DHEA, can cause accelerated aging. I am low in DHEA, but became worse (fatigue & faaaast weight gain) after starting it so my doctor stopped it. I also have poor wound healing (but not the wide scarring typical with EDS).May 26, 2012 at 10:51 pm #2226
Thanks for the response. I decided to personally email Dr. Diana about my case, due to how fast my health and energy are getting worse on a daily basis and with the time I have been sick, I figured this is my best move. I do thank you for your response though, hang in there.May 30, 2012 at 1:15 am #2247
I have also had problems with surgical wounds healing wrong which has developed into a scar that appears to be widened. It’s as if the skin was too tight to hold together and heal properly, so it just stretches apart and heals wide and unusual looking.
Anyone had anything similar to this happen?May 30, 2012 at 1:34 pm #2250PalominoMorganParticipant
That spreading scar is referred to as a “cigarette paper” scar. The skin continues to stretch and gets thinner and thinner. Common in Classical and often found in Hypermobility type too, especially in areas like the back and torso. I have quite a few of these.
The scars that are whitish (for me anyway) and raised like a bump are called “keloid” scars. I have these on my arms, especially my forearms.
Hope that helps.May 30, 2012 at 5:00 pm #2253
It actually does help and I appreciate you taking the time to respond. I’ve been to dermatologists and endocrinologists and my regular m.d., but don’t know what kind of doctor I need to go to so that I can get a diagnosis of my skin condition and possibly some answers about what treatment options there are for these skin problems.
I have had to put off a surgery because the surgeon was not willing to operate on me until I get a diagnosis or get my skin fixed. Any suggestions on what kind of a doctor or specialist I need to go to so I can get this skin problem figured out would really be appreciated.May 30, 2012 at 5:39 pm #2254PalominoMorganParticipant
Have you been to a GOOD geneticist to be evaluated for a connective tissue disorder? I’d start there.
I have EDS and have heard surgeons describe surgery with us as “trying to sew butter together”.June 9, 2012 at 2:10 am #2379
I haven’t. I’m currently looking for Geneticists who are great at diagnosing EDS or a connective tissue disorder, do you have anyone you reccomend?December 25, 2012 at 10:41 pm #3248SunshineParticipant
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