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I’m very glad I have the energy today to have found this website. Usually I can’t concentrate long enough to get on the computer and go on websites like this. I’m 32 years old and I have been sick with various symptoms and conditions which have changed with severity over the years since I was 15 or 16 years old. The mental and physical trauma with being unable to lead a normal life for that amount of time has been unexplainable. I’m sorry if it seems like I am just complaining, but there is no one else that I could say this too that would understand.
Anyway, I am very new to this illness and I’m trying to force myself to sit at this computer even though I feel horrible, but I know if I don’t do it no one else will do it for me. It has been a lot of work for me to get the strength and motivation to find and join the site, but I look forward to visiting this site again and hopefully connecting with other people so that I can share information and hopefully find out how to go about getting a diagnosis. I’m so glad that I found this website.
I am certain this website will bring comfort to many. I watch some of Dr Diana’s video’s nearly every day (as there are quite a few!) and they have answered so many questions about my condition that have remained unanswered for many years. It almost feels like coming home. Just listening to the two videos of Dr Diana’s symptoms, confirm that you are not alone with these weird and wonderful (NOT!) symptoms, I just sat with my mouth open (and getting wider, as most of her symptoms I’d had, at one time or another).
You’ve found people who understand what you have been through and what you are still going through and hopefully, thanks to Dr Diana’s endeavours, we should be able to get practical, effective help, in the not too distant future, that might just give us our lives back. Hang on in there.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross