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September 2, 2012 at 6:38 am #298vickiParticipant
After coming across your site I had a “light bulb “moment!
Thank you so much for being there, I broke down and sobbed !!
I understand you must be extremely busy, but I am at my wits end, i live in Hobart Tasmania, and there is no up to date practitioner here.
I have been slowly getting worse over 17 years, and I’m so sick of being sick. The problem is I live in Tasmania, (the little island under Australia) and most of Drs and Specialists have never seen a lot of rarer conditions.
I had been a very active when younger, dancing teacher, (struck a cord about flat feet, I have flat feet now to my horror!) two jobs, study ECT. I was on top of the world.
Then at 32 I tried to fall pregnant, had a little trouble, but finally fell a year later,
But before that I always had a funny cycle, and very heavy, after my son was born I heremerged and had a pap with “unusual” results, so the Doctor suggested I have a hysterectomy.
Three days later I was back in hospital with septerseama, and collapsed veins.
That is where it all started! And that was 17 years ago;
The Specialist has done a few tests, and all agree that there is something not right however are unwilling to do further investigation. Why do they do this ?
I even had one doctor tell me that I was just fat and depressed, and to go and lose weight (no wonder I’m depressed).
I have been told it must be – fybermalga, depression, arthritis, cushings.Hyper flexibility?
All my tests come back with red highs and lows, but doctors keep saying that it must be normal for me? Im sorry but i feel so sick!
Outlines of my main symptoms are:
I am 50 years old.
I have over mobility,( yes I score 8 out of 9) as my son and 90 % of my family.
Weight gain around stomach and face ( used to be a size 8, now am a size 20 top and size 10 in jeans !, also have a small Buffalo hump )
Have had 2 urine tests, Cortisol is going up however still in “normal” range, thus the doctor said i don’t have Cushings.
Aching joints, mostly wrists and hands,(i feel i need to put pressure on them to stop the pain) Doctor has me on Panidine forte 4-6 a day, which has helped.
Lost strength in my hands, arms and legs.
Headaches every day, occasional migraines.
Stomach pain every day. And stomach is as hard as a drum(someday I feel if I’m going to bust) also have sharp pains, as if somebody is sticking a Knife in, I tend to have IBM occasionally, but celiac has been ruled out, and I’m on a really healthy diet (as I’m trying to lose weight, with no avail)
The GP doesn’t believe me, as he said if I was eating what I’ve told him that I should be losing weight, not putting it on!
Skin eruptions that take over 12 months to heal and leave big white or brown scars (legs, arms and under breasts, the one under my breast has been growing)have had a swab, no infection or fungal present.
My most worrying is my memory, I use to have a high profile job, (I had to leave and this is very distressing as I couldn’t remember people’s names and was forgetting important things) however i am back trying to study and I’m failing as I have no short term memory and have so much trouble articulating words, (know what I want to say but can’t pronounce or find the words) Doctor keep telling me its my age, but this is not normal for me!
Extreme fatigue, but I don’t have sleep apenya.
My latest blood test are:
haemoglobin 133 (115-165)
white cell 15.8 H (4.0-11.0)
neutrophils 10.4 H (2.0-7.5)
monocytes 1.3 H (0.2-1.0)
eosinophils 0.7 H (<0.5)
basaphils <0.1 (<0.3)
platelets 379 (150-400) Last week they where 396
the red cells generally appear normochromic, normocytic. Occasional reactive lymphocytes are noted. The Gp didn't seem concern and said he may do another test in a month or so.
I have had a lot of blood test and always the same, normal range except always high white cells.
sorry about rambling however its 17 years of hell.
Thank you for your time, I feel like you are my last hope! and I really hope to hear from you soon.
Regards Vicki Drew
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