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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

liver cysts – mast cell disorders

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › liver cysts – mast cell disorders

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  • November 5, 2013 at 5:34 am #607
    bibsi
    Participant

    I was goggling on the internet in order to see if liver cysts could be connected to mast cell disorders. And then I came to this forum and a old thread mentioning that liver cysts are often seen in patients with MCAD. First time I have seen this connection mentioned.
    I have a hard time getting diagnosed for MCAD as it is not recognized in my home country (Denmark). And then I have multiple liver cysts and pericarditis (heart inflammation). And no health care providers seems to react or see any connections.
    So I would like to ask Dr. Diana to tell me if there is more to know about this connection, and what to do.
    Best B

    November 6, 2013 at 9:45 pm #4569
    Dr. Diana
    Keymaster

    Well, Hon, I know that we are prone to cyst development all over the place (organs, spine, subcutaneous, etc). I know that many of us have mast cells gone wild and need antihistamines/ mast cell stabilizers. But honestly, I don’t *think* there is any connection beyond that — certainly not in the literature. 🙁 Are you on antihistamines, BTW? I think we are creating the science as we go, honestly! How fun to be a pioneer, right? ha. Big hug…

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