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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Looking for mri advice! Please help

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Looking for mri advice! Please help

  • This topic has 3 replies, 2 voices, and was last updated 6 years, 5 months ago by nolecki.
Viewing 4 posts - 1 through 4 (of 4 total)
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  • September 28, 2016 at 5:50 am #1044
    nolecki
    Participant

    Hello all. I’ve been suffering with health problems… hmm all my lief! Told I had CFS at age 16 (am now 35), had stomach problems since I can remember and for the last 6 years or so have had increasing neurological problems. Consensus so far from everyone I’ve been to see is that I am “normal” and no one can find anything wrong. Had a mountain biking crash with head injury around 7 years ago which seemed to trigger an increase of symptoms. So at the moment I have awful dizziness 24/7, electric shock type feelings in the back of my head, occasional pins n needles in fingers, cant keep warm, heart palpatations , chronic severe neck pain that radiates down through my right shoulder all the way to right hand, very bad brain fog and confusion, depression and anxiety, insomnia. You know the type! I have just found out my b12 and iron and very low so thats probs not helping but I wnated to ask your opinion on my mri’s, as it has been suggested I may have chiari (not by a medical professional, just a friend). The ones attached of my neck were taken today, the ones of my head were around 6 years ago. Havent got report of neck one yet but the brain scan came back normal. Any advice would be so so soooo appreciated! I really want to know how to help myself, I live in Ireland and the health care here is terrible. I’m sick of banging my head against the wall.. no pun intended 🙂

    Thanks so much.

    Attached files

    October 2, 2016 at 7:42 pm #6023
    Barbara
    Participant

    Hi,
    Just quickly looked, as I don’t have much free time these days (who does!) On the neck one taken recently, I can see one or two things that are probably contributing to your symptoms
    1. Low-lying cerebellar tonsils (sometimes termed Chiari 0)
    2. Loss of ‘lordosis’ of upper cervical spine (loss of natural C shape)
    3. Signal difference on spinal cord between C5 and C6 (possible cervical disk issue)
    Also I am suspicious that the distance between C1 and C2 has widened since your fall 7 years ago, so there’s possibly some instability there.

    Check what position your head is in when you experience the tingling, If it’s when your chin is down (head in flexion), there’s probably a need for a Philadelphia collar (NOT a soft collar). I would also suggest a good multivitamin (including all the B vits to help with your chronic fatigue and to boost your immune system) and additionally some form of Vit C regularly through the day to help repair weak tissue.

    Hope some of this helps.

    Attached files

    October 2, 2016 at 8:14 pm #6024
    Barbara
    Participant

    I’ve taken the relevant section of your neck image, and placed it next to your head image, to illustrate what I’m suspicious of with the C1 and C2 vertebrae. I had to enlarge the neck one by 10% to try and get them both similar sizes. The neck one is still smaller but even then you can see that the gap is bigger.

    Attached files

    October 3, 2016 at 2:49 am #6025
    nolecki
    Participant

    Thanks so much Barbara, really appreciate your help

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