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Does anyone here have a low white blood count. Mine was always normal middle range and since the past 2 Years it has been like 3.7. Not sure why? My reumotolgist is the one who said she thinks I have EDS but also thinks I have RA. All blood work is good except low white blood count. She said RA could do that but I wasn’t sure if EDS could too. Se was the one who told me about EDS but doesn’t realize how serious EDS is. She said I just need to strengthen my muscles and I should be fine….sure! My back is killing me and I think I’m going to start with the mast cell treatment. I’m not sure if I should take both doses in the morning or split them. Or should I just start with one dose? Any suggestions would be very helpful. Thanks!!!!!!
Does anyone here have a low white blood count. Mine was always normal middle range and since the past 2 Years it has been like 3.7. Not sure why? My reumotolgist is the one who said she thinks I have EDS but also thinks I have RA. All blood work is good except low white blood count. She said RA could do that but I wasn’t sure if EDS could too. Se was the one who told me about EDS but doesn’t realize how serious EDS is. She said I just need to strengthen my muscles and I should be fine….sure! My back is killing me and I think I’m going to start with the mast cell treatment. I’m not sure if I should take both doses in the morning or split them. Or should I just start with one dose? Any suggestions would be very helpful. Thanks!!!!!!
Hi! A rheumatologist could likely help you sort that out. If you should happen to have RA (which happens to some of us), mast cell treatment is critical anyway! In OUR house, we take a full dose of H1 and H2 antagonists in the morning and another full dose in the evening. “FINE” — that word kills me!
Big hug,
DianaOh, and Momof3, mast cell disorders can cause “cytopenia” — a lack of cells – red, white, purple, whatever (kidding about the purple). Yes, I think a look at mast cell issues is a must do for you! Great question! 🙂 Diana
Yes, FINE bothers me too. I really need to make my shirt design then I can let the measly “profits” collect for my service dog when I finally get one.
My white blood cells were on high side of normal. I’m far from normal though so I think my bloodwork and results are the last persons anybody would want to compare to. I just had a massive upper respiratory infection and not only did my body not spike a fever it dropped temp from my 97.7 range to 95.9. Way to make no effort immune system. Almost had pneumonia and it did nothing. Of course I just THINK about a stressful situation and the mast cells dump my stomach over and lately throw raised red welts on my neck too (aside from my normal fluorescent flushing.)
I think our bodies get so out of whack they don’t know which way is up. Dr Pocinki spoke at the EDNF conference and said to think of the autonomic system as another organ. If one part of it is out of balance, the whole thing is. I think our bodies are trying to self-correct and have gotten so off course that the compass is spinning and the GPS is saying “signal lost”.
Wow, Palomino, that is impressive hypothermia! I am going through that (AGAIN). I can’t get out of bed for a while because if any part of my body is not covered, it gets painfully cold. I just wait for a flush and THAT’S MY CUE to get out of bed! Jeez, Louise… Crazy stuff, don’t you think?
I am fairly convinced I am under-treated (and I KNOW you are!). But for hypothermia? YOU WIN! Ha. 🙂 Diana
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