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I have been reading about this Mast Cell thing you have been explaining on the Vidios Dr Diana please could you tell me, by Mast Cell do you mean a type of allergic reaction? and what is the difference with what happens in an auto-emune illness e.g. Lupus? and what happens in a mast Cell illness?, just trying to sort things out in my head. I have a diagnoses, so far of ME, POTS, Fibromyaligia, Hypermobility, Ryanarunds, IBS and Dyslexia. I’m waiting to see a Doctor to see if maybe I have EDS and if so dose it underline all my problems?, I think maybe it dose? I also have lots of problems with allergies, skin rashes, dry eyes etc. I want to prepare myself for the visit to the specialist in June, so trying to get my head around just what to ask him, don”t want to go with a whole long long list of things and thus not be herd or get side tracked, mostly I need to know about EDS and is it my main underlying problem and how dose that fit in with all the problems Ive had since teens (I’m 51 Now). this is going to be a private appointment, as none of the NHS Doctors want to know anything about me possible being an EDS patients. so I don’t want to waist the appointment, it will be my only chance to possible get some answers and hopefully more useful help.
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross