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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

MCAD/Mastocytosis Dr. Recommendations???

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › MCAD/Mastocytosis Dr. Recommendations???

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  • September 8, 2011 at 3:15 pm #64
    Christi
    Participant

    Does anyone have recommendations for Dr.s who deal with MCAD/Mastocytosis? I live in central Pennsylvania, closer to Pittsburg than other big cities.

    Thanks,
    Christi

    September 24, 2011 at 3:14 pm #1496
    Dr. Diana
    Keymaster

    Does anyone have recommendations for Dr.s who deal with MCAD/Mastocytosis? I live in central Pennsylvania, closer to Pittsburg than other big cities.

    Thanks,
    Christi

    Hi Christi, If you have EDS or POTS (and even if you don’t, actually) THE doctors to see concerning mast cell issues are Dr. Castells and Akin — they are in the same office in Boston. Wow, are they good! Their number is 617.732.9850.
    If that won’t work for you, the folks on the forum at http://mastcelldisorders.wallack.us
    are wonderful and may be able to recommend someone a bit closer to home. Please let us know if you find someone you like, OK? 🙂

    September 24, 2011 at 4:32 pm #1500
    tracey
    Participant

    I think I will give them a call just to see if I have MCAD or to rule it out. I need to understand what IM dealing with as well.

    October 24, 2011 at 2:55 pm #1543
    Dr. Diana
    Keymaster

    Oh — Dr. Afrin in N.Carolina is good, I’ve heard. And I mentioned Dr. Castells. After speaking to Dr. Akin (Dr. Castell’s associate), I would recommend Dr. Castells. Ahem. 🙂 Diana

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