- This topic has 1 reply, 1 voice, and was last updated 10 years, 7 months ago by .
- You must be logged in to reply to this topic.
I am meeting with an actual cardiologist for the first time tomorrow. I have very bad orthostatic intolerance. I have also had tachycardia, hypotension, and fainting. Any advice for what to say/show the doctor to get them to give me a tilt table test? I know if I can do a tilt table test I can get a diagnosis and try something like beta blockers that may help.
Hi Robynne, I know that you and I just had a consult (I enjoyed speaking to you, BTW!), but for others who may be wondering, if you “fail” a poor man’s tilt table test, that would be ‘helpful’. I could pass a poor man’s tilt table, but HOLY COW, I couldn’t pass the ‘real’ one! As I mentioned, I begged my neuro for a letter for them, suggesting that they test me for autonomic dysfunction and include a TTT. I had the letter in hand, but it turned out, I didn’t really need it after all. Oh, perhaps you could stand up AND FAINT in front of the doctor. Perhaps that would help? 😉 It’s amazing the hoops we have to jump through to get tested! Jeez Louise! Let us know? 😉
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross