• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Mirena coil and POTS secondary to EDS…. bad idea?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Mirena coil and POTS secondary to EDS…. bad idea?

  • This topic has 3 replies, 2 voices, and was last updated 8 years, 4 months ago by Mog the Dog.
Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • May 5, 2015 at 4:44 pm #831
    Rima
    Participant

    Hello all,
    Any thoughts about having a Minera coil fitted? Am concerned about the affect of the progesterone re cologne elasticity and worsening of both EDS and POTS. That said i feel terrible whenever i have my period (headache for 2 weeks pretty much guaranteed, and am even more exhausted than normal.) If anyone has any experience of having this I’d love to hear about it.
    Thanks

    May 6, 2015 at 9:48 am #5479
    Mog the Dog
    Participant

    After doing extensive research on hormonal effects on loose joints, I learned that everyone’s experience with hormone therapy, including the Mirena, is unique. That being the case, only you know best whether to try it. You will find some people saying that the Mirena was an easy solution to their problem while others will tell you it was like being dragged through hell.

    The research does show that some women experience a worsening of their EDS-related symptoms while taking progesterone (check out Howard Bird’s Hormonal Aspects of Hypermobility), so I opted to avoid taking any hormones except when I had to in order to stop menstrual hemorrhage. The only thing I noticed while on progesterone is that I became excessively emotional and would find my self in a crumpled heap, crying uncontrollably at times. I’ll opt for a headache over that. On the other hand, I lost over 4 pints of blood during one period, so the progesterone was a life saver for me.

    How old are you and when did the menstrual cycle headaches start? During what part of your cycle do you start getting the headache, and how long do your periods last?

    May 7, 2015 at 8:36 am #5481
    Rima
    Participant

    Hi, thanks for your thoughts. Am 37, had headaches for …years…not sure how many, I get the headache starting a couple of days before my period and the period lasst a week or so… the headache more like 2 weeks, pretty consistently. The emotional incontinence, that’s me all over progesterone or not 🙂 The headache is pretty intolerable as am barely functional for 2 weeks and i have 2 young kids. And i feel grim on a daily basis without throwing that in, so if there is a way of getting rid of the headache it’d help!

    May 7, 2015 at 9:54 am #5482
    Mog the Dog
    Participant

    So it appears that the headaches start when the estrogen is at its lowest and continue until the estrogen levels start rising before ovulation.

    It sounds like your estrogen levels are unusually low, which can cause debilitating headaches. Some women have found relief from these cyclical “low estrogen headaches” from taking magnesium supplements. Ask your doctor about it. Taking a magnesium supplement sounds safer than adding synthetic hormones to the mix plus all of the other risks that come with the Mirena.

  • Author
    Posts
Viewing 4 posts - 1 through 4 (of 4 total)
  • You must be logged in to reply to this topic.
Log In

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020