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Things at home have been pretty okay for a change, but I have this over powering wirry that my son may develop MS-
He has had an MRI and there were white lesions on his brain, but because the DR’s were looking for tumors, it wasn’t mentioned other than we do need to follow up on it. We are waiting to get into a neurologist but to be honest, we are also in the middle of having to move out of state and the docs have been put on the back burner for now.
What are the signs and should I bring this up or move on? I haven’t looked into it really other than to know that there is an EDS connection. My son was not able to talk at all until he was 4 and he is on seizure meds. Once he got onto the meds, it was immediate, he could talk. Also during an EEG, twice, there was some slowing in part of his brain, not sure if that has anything to do with it. I hate jumping to conclusions but I can’t stop thinking that this may be in his future.
Hi Hon, Do you know where I would start? I’d ask the docs to have the MRI’s REREAD, addressing your question of brain lesions. This way, you don’t have to go through another MRI right now. It still doesn’t “fix it”, of course, but it’s a start. Soooo many people with Anti-phospholipid syndrome are misdiagnosed with MS, I think a thrombotic profile is a must (and I’d ask the docs to throw in the test for the MTHFR gene, too). It is my humble opinion that the many “different forms” of MS, may actually be misdiagnoses… Which is lousy, because most of the conditions that are missed, are quite treatable — no horrible MS drugs or angioplasty required. cool? Big hug, Diana
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