- This topic has 3 replies, 3 voices, and was last updated 8 years, 4 months ago by .
- You must be logged in to reply to this topic.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › MUSCLE TWITCHES, ANYONE?
Is anyone having muscle twitches? I am, and I am just trying to piece everything together and figure it out.
Thanks, MJ
Hi MJ,
Been having them for years, see post at:-
http://prettyill.com/forums/viewthread/318/#1678
Anyone else ?
Barbara
(UK)
Hi Barbara.
Very interesting… I read the other posts that you mentioned. I believe I have small fiber neuropathy and I am in the middle of trying to get diagnosed. And that feeling of wondering if you’re going to wake up in the morning – been there too. I also have erythromelalgia but I do not have a solid diagnosis yet.
I also had a severe case of whiplash 26 years ago. I believe the whiplash was the trigger to the starting point of my decline – I was highly active and extremely athletic prior to this. Snowboarding, volleyball, golf, rollerblading etc. And now I can barely function. I’m sure everyone here can relate.
Do you think that what is happening to us – do you think anyone will figure it out in our lifetime? I often wonder if treatment will only be in time for the next generation…
MJ
My daughter and I both suffer similar symptoms. She has been diagnosed with POTS I’m still waiting for my tilt table test. We both have muscle twitches mainly in foot and hand muscles but can be in leg and arm muscles last up to 30 seconds. You can actually see it jumping. If I didn’t know better I would swear it was something crawling around under the skin. It seems to happen quite often .then won’t happen again for a month.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross