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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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MUSCLE TWITCHES, ANYONE?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › MUSCLE TWITCHES, ANYONE?

  • This topic has 3 replies, 3 voices, and was last updated 7 years, 10 months ago by Trevor.
Viewing 4 posts - 1 through 4 (of 4 total)
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    Posts
  • March 7, 2015 at 11:01 am #803
    MJ
    Participant

    Is anyone having muscle twitches? I am, and I am just trying to piece everything together and figure it out.
    Thanks, MJ

    March 7, 2015 at 9:19 pm #5348
    Barbara
    Participant

    Hi MJ,
    Been having them for years, see post at:-

    http://prettyill.com/forums/viewthread/318/#1678

    Anyone else ?
    Barbara
    (UK)

    March 8, 2015 at 4:07 pm #5351
    MJ
    Participant

    Hi Barbara.

    Very interesting… I read the other posts that you mentioned. I believe I have small fiber neuropathy and I am in the middle of trying to get diagnosed. And that feeling of wondering if you’re going to wake up in the morning – been there too. I also have erythromelalgia but I do not have a solid diagnosis yet.

    I also had a severe case of whiplash 26 years ago. I believe the whiplash was the trigger to the starting point of my decline – I was highly active and extremely athletic prior to this. Snowboarding, volleyball, golf, rollerblading etc. And now I can barely function. I’m sure everyone here can relate.

    Do you think that what is happening to us – do you think anyone will figure it out in our lifetime? I often wonder if treatment will only be in time for the next generation…

    MJ

    May 17, 2015 at 1:49 am #5489
    Trevor
    Participant

    My daughter and I both suffer similar symptoms. She has been diagnosed with POTS I’m still waiting for my tilt table test. We both have muscle twitches mainly in foot and hand muscles but can be in leg and arm muscles last up to 30 seconds. You can actually see it jumping. If I didn’t know better I would swear it was something crawling around under the skin. It seems to happen quite often .then won’t happen again for a month.

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