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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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My 25 year old son's great toe has stopped working?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › My 25 year old son's great toe has stopped working?

  • This topic has 4 replies, 3 voices, and was last updated 9 years, 9 months ago by Lab-Scientist-Lady.
Viewing 5 posts - 1 through 5 (of 5 total)
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  • August 6, 2013 at 2:22 pm #516
    dab78
    Participant

    5 years ago he was playing volleyball at the beach and pushed off with his foot and when he landed his great toe didn’t work. when for mri’s neuro and podiatrist did not know why. went to therapy for a while and it started working again. about 3 weeks ago my son complained about his ankle hurting badly. then out of the clear blue sky his big toe stopped working again. pcp has know idea why. sending us to neuro again and ortho podiatrist? he was dx @ the age of 3 @ the local children hospital as being developementally delayed! i told them his wasn’t-they did have to teach him how to use the muscles in his mouth and tongue, but once they did he’s way above average IQ. he is my child that broke arm-collar bone x3-fingers. he is hypermobile not alot but for a guy he’s tons more than my husband. i’m trying to get dx’s for heds, POTS dysautonomia and other things. i’m just worried the local people will mess something up. i’m having enough problems with experts at cleveland clinic for me. he also did not walk until 14 months.anyone with ideas? thanks denise

    August 7, 2013 at 9:51 pm #4066
    charlie1
    Participant

    Hi Denise. I’m sorry this is happening to your son. I have a 25 yr. old daughter so I know how you must feel. We don’t want our loved ones experiencing things such as this, at any age. Not trusting the local professionals is an issue all on its own! Been there, still there…

    All the best to both of you while you travel this journey.

    August 7, 2013 at 10:44 pm #4068
    Lab-Scientist-Lady
    Participant

    It does sound like EDS. It is hard to get an diagnosis, but make an appointment with a geneticist and give them a complete medical history of every thing you can remember no matter how small. He may have a nerve that is getting pinched by his hypermobile joints. If you can get some physical therapy to relieve the pressure on the nerve maybe regain function of his big toe.

    August 8, 2013 at 5:56 am #4070
    dab78
    Participant

    thank you both so much! i thought about taking him to my geneticist but just wasn’t sure on what to do. times like these just having a second opinion from you guys makes the world of differance.(saying what i’m thinking is great support.) thanks denise

    August 22, 2013 at 12:01 am #4163
    Lab-Scientist-Lady
    Participant

    Hi, Denise are you and your son doing any better?
    Shonda

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