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- This topic has 3 replies, 3 voices, and was last updated 7 years, 6 months ago by Susanhurts.
August 15, 2015 at 6:16 pm #884SusanhurtsParticipant
I had a tough concussion one year ago. My vacuum cleaner two steps above me fell on my head when I bent down to pick something up on the stairs. Clear fluid ran from my nose soon. That night when I lay down I had the most horrible frontal pressure headache. The pressure to a lesser degree is with me all the time. I have EDS, MCAD, and POTS….I do have one lyme bar not enough for the CDC. I just know that all hell broke loose after that concussion. What has helped are the antihistimines …they help with the anxiety, itching, etc.
Question: My nose starts running when I drink my “eight glasses” of water a day. This never happened before the concussion. I also get a headache when the doctor tried to help my headache with the smallest dose of ketamine…I mean tiny. Well, headache is not a side effect but increasing crainial pressure is. Do I have excess pressure since I had the concussion and that answers many of my problems? How do I fix it? I am going to see a NUCCA doctor to try and put the C1 C2 back in yet being EDS it may not “stay”. HELP!!!!August 19, 2015 at 9:10 am #5604Dr. DianaKeymaster
Hi Susan, I don’t think anyone can tell us if you have high intracranial pressure, but it is possible. I wonder if you have other symptoms of high intracranial pressure? Have you been evaluated by anyone? Has anyone done a Diamox trial with you? Do you see the chapters about the symptoms of high intracranial pressure and “Diamox Pearls” (you mentioned that you have The Driscoll Theory book)? I hope that helps you get some answers! 😉August 20, 2015 at 7:22 pm #5612BarbaraParticipant
I do get where you are coming from because any shift of either C1 or C2 vertebrae, from it’s normal alignment, can lead to a change in cerebro-spinal fluid (CSF) dynamics – and subsequently raised intracranial pressure. I’ve heard of the NUCCA chiropractic method before and, although EDSers have to be very careful indeed, it may turn out to be just what you need. In the meantime, as Dr Diana says, the Diamox could be very useful.
Don’t forget that the affects of persistent raised intra-cranial pressure may show up on an Eye Fundus photo, taken by an optician, just a thought. Do let us know how you get on.
BarbaraAugust 30, 2015 at 3:45 pm #5648SusanhurtsParticipant
Thank you both. Yes, Dr. Diana…I am now on Diamox. Big help. It seems that I may need more than the 125, 125, and 250. Does it stop working as well? I am using the drops I purchased from your site and staying alkaline. I wish I could be more so. Do you know people who take more Diamox? My doctor has basically given me free rein. He watched all of your videoes. The H1 and H2 helped much but gave me real gut issues. My stools became clay colored. I was on Pepcid 20 twice a day, zyrtec twice a day, ketotifen 1 pill 4 times a day…Help.
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