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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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my symptoms

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › my symptoms

  • This topic has 3 replies, 3 voices, and was last updated 6 years, 1 month ago by lala.
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  • February 10, 2017 at 5:45 pm #1084
    lala
    Participant

    Hi Everyone, I have done a lot of research online and think I may have pots. I am a 38 year old woman andI have had dry eyes and mouth for years starting in early 20s but dont have markers of sjogrens. About 5 years ago I had an episode of tachycardia and spiked blood pressure and was put on metoprolol. I felt tired on it and started having odd episodes of tachycardia high blood pressure and shortness of breath in middle of night. The episodes were very scary and doctor said panic attacks which i didnt believe.

    I then started experiencing bad constipation, bloating, back pain and shortness of breath after meals. I was diagnosed withgastritis a d esophagitis. Ive had brain fog which has waxed and waned throughout the years. I am now pretty fatigued and cant stand for long periods. I also get confused and quite irritable which is troubling. The brain stuff and fatigue are the most bothersome symptoms at this point.
    I was on plaquenil for supposed autoimmune issues but stopped due to bad side effects.

    Anyway ive been to different specialists and not much help and i basically detest doctors now lol. Id like to get this figured out and was looking for advice here. Does anyone have ideas to improve brain fog and irritability? What specialist can i see to get this figured out? Im willing to do anything i can to help myself so im open to thoughts/ suggestions anyone may have. Thanks.

    February 12, 2017 at 1:36 pm #6094
    Dr. Diana
    Keymaster

    Hi Lala, I’m so sorry to hear about your symptoms! To determine if you may have POTS, a tilt table test (or even a “poor man’s tilt table test”) will generally reveal it. If it is POTS, locating the underlying medical cause is essential. I’ve seen abnormal intracranial pressure, vagus nerve problems, vascular anomalies, endocrine problems, disorders of the immune system, and abnormal inflammation as fairly common contributors to this condition (among other causes). If you are not able to get to POTS Care, with your dry eyes, dry mouth, and cognition issues, I wonder if you could get some help from a supplement discussed in the studies we released here: http”www.ChronicDiseaseDigest.org Although this discusses its role in Chronic Fatigue Syndrome, it sounds like it may also pertain to you! Gentle hugs…

    February 14, 2017 at 10:15 am #6101
    Barbara
    Participant

    Were you sweating when you woke up with your problems during the night and, did these continue for some time ?

    Regarding your constipation (and some of your other symptoms) checkout the info on Magnesium Deficiency:-

    http://prettyill.com/videos/watch/the_magic_of_magnesium

    http://prettyill.com/forums/viewthread/1802/#5269

    http://ods.od.nih.gov/factsheets/Magnesium-HealthProfessional/

    Magnesium_and_EDS_by_Heidi_Collins_MD.pdf

    It really is an eye-opener. For some people there will be an initiating event such as a trauma, or a virus, or something similar that swells the brain but for other people, they cannot link any specific trigger to their symptoms, it just sort of crept up on them and this is where a progressive magnesium deficiency could be the initiating factor.

    February 14, 2017 at 7:51 pm #6110
    lala
    Participant

    Hello again. Thank you both for the responses. In regards to the magnesium I remember a doctor telling me years ago that I was low. Im also low in sodium. I checked bloodwork fromvJuly and saw white blood cell count is high along with neutrophils and monocytes if that means anything. Can magnesium adversely affect heart like mess with heartrate? I am taking a beta blocker for tachycardia/high blood pressure .

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