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First, I am so grateful to have found prettyill.com. Thankyou Dr Diana for putting together the puzzle. I was so excited watching your videos because it tied together so many of my odd symptoms and now I am empowered to take this info to my doctor in 2 days.
Last month I had an MRI ordered by an ophthalmologist. They were looking for MS lesions, but found nothing abnormal to note.
I think i can see the partial sella in one of the images, but am most intrigued by the triangular shape of my brain. I can’t find any comparable images online, so thought I would put it out here for comment.
Sorry for the reflections and grainy images. It is hard to take photos overhead with the iPad when my wrists are playing up!
Saw my GP this week. She said that the triangular shape was a normal brain shape, then said she doesn’t understand much about MRI’s. I pointed out the empty sella, and showed like images from a radiology education website. She said it must be normal or the radiologist would have noted it. We had some circular reasoning where we debated whether benign finding would be reported on the MRI summary if they were considered benign in 99% of cases. She wasn’t convinced, but referred me to a Rheumy specialising in EDS, a geneticist, no to have an echocardiogram. Baby steps!
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross