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Hi everyone. I have a dx of EDS type 3 and have been having worsening issues with fatigue & muscle weakness. On top of other neuro issues that my neurologist doesn’t seem to be taking seriously as her advice was “get a better pillow” Then the past few weeks have had issues with eyelids not working so my eye doc wanted me to see a neuro-opthamologist and my orthopedist thinks I should be evaluated for myasthenia gravis, lambert-eaton, MS and ALS- with MG and MS being at the top of the list. I have a dorsal column stimulator (pain control implant) and cannot get MRIs. Has anyone gone through testing for these- wondering what to expect and how EDS can make a dx screwy… for example, when getting my RSD diagnosis i kept telling them i couldn’t move my ankle, and they kept insisting my range of motion was fine- which it was for a non-eds’r but for me was very limited. Can EDS “mask” any issues or b/c I have EDS do they just keep saying it is EDS when it could be something else? Also, what are the best types of docs to differentiate between these issues??
Thanks in advance.
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