Near sighted and EDS

[anouk]

Hi there,

I hope I said it right: “near sighted”, I mean that I cannot see far away. Lately I need to update my glasses every 6 months and reading up close is becoming a problem too.I am 44 years old and so I have the right age to not be able to read without glasses. But the deteriation goes very quickly. Now I have troubles reading when the light is dim. I live in the Netherlands and there is not too much known about EDS nor is it all to well recognized by all doctors.

I scanned the forum for similar topics but I am not familiar with all the medical terms in English so maybe I overlooked a topic. I appologize.

My eye doctor said that due to the EDS my eye ball is getting bigger since the soft tissue is so weak. Therefore I can see less and less. He told me that there is nothing to be done about it and also that I needn’t come for further check ups in the future.But that I need to be aware that my retina does not tear off! If I saw lightning flashes and black patches than I should rush to an eye doctor, any eye doctor. But until then I should not see a doctor for my eyes. I find this very strange. I have gotten myself an appointment in a few months for an eye hospital in the Netherlands, but I would love to get some info that I can take to them. Just in case they don’t have a clue either.

Hope someone can help me with some information. Cannot reach dr. D directly.

Kind regards,
Anouk

[Barbara]

Hi Anouk,
Just to let you know that Dr Diana has kindly written paper to help us all to get the right type of eye check-up. It is available online at:
http://www.totaleyecare.com/Diana-Driscoll-Ehlers-Danlos-Eye-Doctor-HANDOUT.pdf
Hope this helps.
Barbara
(UK)

[Barbara]

Whilst we’re on the subject of eyes, has anyone had a ‘myopic shift’?
Can anybody tell me what it means ?
Is it something every 50 year old woman should expect, or is it linked to EDS ?
Regards
Barbara
(UK)

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