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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Near sighted and EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Near sighted and EDS

  • This topic has 2 replies, 1 voice, and was last updated 11 years ago by Barbara.
Viewing 3 posts - 1 through 3 (of 3 total)
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  • May 4, 2012 at 3:28 pm #181
    anouk
    Participant

    Hi there,

    I hope I said it right: “near sighted”, I mean that I cannot see far away. Lately I need to update my glasses every 6 months and reading up close is becoming a problem too.I am 44 years old and so I have the right age to not be able to read without glasses. But the deteriation goes very quickly. Now I have troubles reading when the light is dim. I live in the Netherlands and there is not too much known about EDS nor is it all to well recognized by all doctors.

    I scanned the forum for similar topics but I am not familiar with all the medical terms in English so maybe I overlooked a topic. I appologize.

    My eye doctor said that due to the EDS my eye ball is getting bigger since the soft tissue is so weak. Therefore I can see less and less. He told me that there is nothing to be done about it and also that I needn’t come for further check ups in the future.But that I need to be aware that my retina does not tear off! If I saw lightning flashes and black patches than I should rush to an eye doctor, any eye doctor. But until then I should not see a doctor for my eyes. I find this very strange. I have gotten myself an appointment in a few months for an eye hospital in the Netherlands, but I would love to get some info that I can take to them. Just in case they don’t have a clue either.

    Hope someone can help me with some information. Cannot reach dr. D directly.

    Kind regards,
    Anouk

    May 4, 2012 at 6:46 pm #2112
    Barbara
    Participant

    Hi Anouk,
    Just to let you know that Dr Diana has kindly written paper to help us all to get the right type of eye check-up. It is available online at:
    http://www.totaleyecare.com/Diana-Driscoll-Ehlers-Danlos-Eye-Doctor-HANDOUT.pdf
    Hope this helps.
    Barbara
    (UK)

    May 4, 2012 at 6:49 pm #2113
    Barbara
    Participant

    Whilst we’re on the subject of eyes, has anyone had a ‘myopic shift’?
    Can anybody tell me what it means ?
    Is it something every 50 year old woman should expect, or is it linked to EDS ?
    Regards
    Barbara
    (UK)

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