April 4, 2018 at 3:43 pm #1161
I am very interested in giving Neuroprotek a good try (3 months) but am confused as to whether it replaces other things I am taking. I have looked at Dr. Theoharides’ website and some videos but there is almost too much information for me to find the tree in the forest.
I am hypermobile so most likely not histamine intolerant. But i do have food sensitivities. My older brother (70) is hypermobile/high functioning autistic so this also leads me to believe I am not histamine intolerant but have something going on with mast cell or basophil or neutrophil activation.
I have responded almost miraculously to Parasym plus, diamox and prescription strength potassium citrate. I also take magnesium citrate, ester C, D3, sometimes fish oil caps (but i seem to not really want to take fish caps for some strange reason).
When I added the H1 antagonist (generic Zyrtec ) my improvement was another exponential leap forward (why did I wait so long?) The H2 antagonist (generic Zantac ) does not agree with me, though. I was getting ready to discuss with my Internist stabilizers and other histamine antogonists, when I learned about Neuroprotek.
My question is: does Neuroprotek replace any of what I am taking or do I just have to experiment to see? If I am to experiment, any suggestions as to what order I should discontinue stuff? I was speculating Neuroprotek would replace the Histamine antagonists and the stabilizers. Does that seem correct?
Thank you Dr. Diana. My quality of life has improved tremendously due to your research and it’s so nice to know that it will continue to improve.April 17, 2018 at 1:43 pm #6273
I apologize. I only just found out about this research myself. Dr. Theoharides is a physician pharmacologist who has done much research into mast cells and has developed products that have been very successful for some. Here is a link to his website and a search phrase that I use to find out more about him. He has many videos on his website that explain his research which is mostly involved in autism but also other zebra like conditions. I would really like to find natural alternatives to taking the pharmaceutical histamine antagonists and pharmaceutical Mast Cell medications. I’ve also found a lot of great information at the website “healing histamine” even though I don’t think I really have histamine intolerance.
Dr. Theo mast cell
“Pharmacology is the core of translational research leading to ways of alleviating disease. We study how mast cells are involved in allergy and inflammation. We showed that mast cells are activated by CRH and neurotensin secreted under stress to release inflammatory molecules selectively, including mitochondrial DNA (“innate pathogen”) leading to disruption of the gut-blood-brain barriers and to inflammation. We have also shown that the flavonoid luteolin is inhibitory, and a patented liposomal formulation NeuroProtek®, benefits patients with allergies, autism and chronic fatigue syndrome.”April 20, 2018 at 6:24 am #6275…………..Participant
I have been taking Neuro Protek since around May or June (the regular version, not the low phenol one) and it has been very good. I’ve never had any negative reactions to it and it is part of my total MCAS protocol of Zyrtec, Ketotefin, Quercetin, Neuro Protek and Daosin. It is hard to say which med has the greatest effect but for now I am not touching any of them b/c it is working. My rescue med is Atarax but have not had to take it in the last 1-2 weeks at all. I would recommend trying NP and nothing to lose IMO.April 28, 2018 at 10:51 am #6277Dr. DianaKeymaster
Hi there! I’m afraid I never got any help from this supplement and like many of others, took some supplements just because I HOPED they would help! As answers came, it became easier to figure out which ones I could skip. You may find this post helpful about MCAS and POTS:
IS it MCAS or a condition that mimics MCAS. Hope that helps! 🙂April 30, 2018 at 5:07 am #6279…………..Participant
Is it safe to use NeuroProtek with Strattera or any other medications?May 3, 2018 at 5:58 pm #6280
Thank you Dr. Diana for taking time out of your busy schedule for your reply. I looked at the reference that you mentioned and I think you’re a hundred percent right.
I don’t want to have pots but I suppose it shouldn’t surprise me. I recently remembered when I was in my early twenties there was a time where I would stand up, cross the room and be too tired and dizzy and have to go lay down and then after a couple minutes of laying down I was fine. awake. alert. not tired. but as soon as I stood up it was really hard. I would walk across the room and be so tired I’d have to lay down again. And the brain fog really started bad. I went to all sorts of doctors and long story short they tried to psychoanalyze me… why would this thin, athletic, competitive, fairly attractive young woman be sick? They even made passes at me. Pretty much gave up on most doctors after that. But I think it may have even started around 8 years old. now it still happens but I’m sort of used to it. I haven’t been able to accomplish what I would like to because of fatigue but as I mentioned the parasym plus, Diamox, and H1 antagonist has changed my life so much for the better including unexplained anxiety and anger. it’s nice to feel calm and I miss it when it’s not there. I’ve also found a great internist who is very receptive to your work. I haven’t been officially diagnosed with pots yet but if I am then I will be glad to participate in your study.May 3, 2018 at 6:12 pm #6281Dr. DianaKeymaster
That just warms my heart, Anneal! It is so great to hear that what I’ve shared is helping others. xxoo
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