March 5, 2016 at 1:27 am #978WrenParticipant
My oldest son (21) started having digestive problems about 8 months ago. A year ago, I (Mom) was diagnosed after 9 years of trying to find help with craniocervical instability (had craniocervical fusion), Chiari, syringomyelia, scoliosis, and dysautonomia (orthostatic hypotension). Out of that experience we decided to have our daughter checked as they said I had hypermobility in my ligaments in my neck, and she was extremely flexible everywhere. She and I were just diagnosed with EDS-Hypermobility Type. Our third son was diagnosed with pervasive developmental disorder at age 8, but after evaluating our family, they now think it is actually EDS with possibly craniocervical instability, etc. He is now 18, and he is also hypermobile. We still need to have both of these kids checked for dysautonomia, and we are considering surgery for both. So my first son’s digestive problems were another blow. We are hoping it is not EDS, but we are wondering. At this point he is unable to go without meds. He has 4 tests scheduled, but in the meantime he feels REALLY sick. Sometimes if he eats, he can’t sleep. The specialist said so far that it seems like his organs would work, but that they don’t seem to be triggered to work. Having listened to Dr. Diana’s info, we remembered hearing something similar. We are very concerned for his gut health, especially eating college food (not that great where he is:)). He is trying to finish his senior year sick, exhausted, unable to sleep well, unable to eat well, losing weight, etc. We are concerned the meds he is on will only make him worse as they deplete the good bacteria in his gut . We ordered Dr. Diana’s three supplements (Parasym Plus, Digestive Enzymes, and Soothing Digestive Aid). He is home for one week, and our goal is to restore him as much as is possible. Would you recommend starting with the maximum dose of each supplement, and would you recommend him taking all three supplements at once. We are changing our diet over to gluten free gradually as I learn how to cook differently. If anyone has any thoughts on this, we would greatly appreciate the help! It is hard to be sick, but SO MUCH HARDER to watch three of our children suffering with it! 🙁March 11, 2016 at 5:01 pm #5906Dr. DianaKeymaster
I;m so sorry your kids have been so sick… 🙁 As far as getting the GI tract working, if your son has symptoms of vagus nerve problems and/or low acetylcholine, Parasym Plus (2-3 caps first thing in the morning) would be the first thing I’d go to. The Digestive enzymes should be taken about 20-30 minutes before eating, and the Soothing Digestive aid should be taken when he starts to eat (you want to get the enzymes into his intestines before introducing the acetic acid). I hope it is as helpful for your son as it was for mine. Meanwhile, I hope you have a copy of The Driscoll Theory? All three of us (and others, of course) were able to avoid fusions by decreasing our intraocular pressure. Not everyone is as fortunate, but I see patients regularly who were advised to have fusions, but did GREAT with Diamox instead. Gentle hugs…March 24, 2016 at 2:35 pm #5913TayaParticipant
The insomnia after eating sounds a bit like me. Food intolerance gave me terrible insomnia. I have mast cell and autoimmune problems, candida, and gut health problems, pyroluria, and a slew of other things as well.
I recently tried Parasym Plus and it was wonderful for my pain, but I couldn’t sleep on it. If that happens to your son, or either way, you may want to consider magnesium. Not just any magnesium. Try a few kinds. Specifically magnesium oil on the feet at night, Magnesium Threonate (knocks me out for a few hours), magnesium malate is good for absorption, magnesium glucarate if there is a deficiency. Magnesium threonate is supposed to be good for building cognitive function.
Altering my diet pulled me out of depression, and it’s helped with autoimmunity, but I am still working on that.
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