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Articles pertaining to EDS, IBS, CFS, fibromyalgia – and many commonalities amongst those who have sought or provided information via this web support/research group. This was sent to me by a very active officer/advocate within Marfan and EDS chapters.
http://www.psychologytoday.com/blog/turning-straw-gold/201212/physical-illnesses-may-soon-be-labeled-mental-disorders (Link to the article below-# 1)
HI GiveMyDaughtertheShot! Yes, I saw this and it frightened me, too. (BTW, you may need to cut and paste the links). For those of us with illnesses (especially “invisible illnesses”, being called a ‘mental patient’ just because you are seeking answers is scary, indeed. I’m a huge advocate of the “e-patient” movement. We should be reviewing our own RAW DATA and comparing notes with others and spending time reading about our condition is a MUST DO. Doctors don’t live with us 24/7 and it is not realistic for them to understand just how many symptoms we can have. These symptoms tend to change over time, which really discombobulates many doctors! No, we need to advocate for ourselves and for our children, I think. I hope and pray this DSM changes. It is not helpful for anyone. Thank you for bringing it up! 🙂
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