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I was recently diagnosed with EDS Hypermobility and POTS. I’ve had a constant headache with tinnitus for 1 year this week with migraines several times a week. I also have neck, shoulder, low back pain and sacrum pain due to EDS and also due to Bertolloti’s Syndrome (transitional 5th lumbar vertebra resulting in partial sacralization).
I started Diamox 4 days ago and am getting some headache relief. It’s still there, but it’s lighter. But yesterday I started getting this aching kind of burning pain in my sacrum on the right side (same side as the Bertolloti’s issue). I vaguely remember from prior CraniaSacral therapy that the dura runs through (or maybe connects?) in that area and it is all connected with the head, CSF, etc.
So my two questions are…
1. Has anyone else experience this with the Diamox?
2. What should I do next?
Thanks in advance for any guidance!
If it’s a new symptom, definitely let your doctor know and speak to them about it.
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