- This topic has 1 reply, 1 voice, and was last updated 7 years, 7 months ago by .
- You must be logged in to reply to this topic.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Pain › New to Diamox; Pain in Sacrum
Hi,
I was recently diagnosed with EDS Hypermobility and POTS. I’ve had a constant headache with tinnitus for 1 year this week with migraines several times a week. I also have neck, shoulder, low back pain and sacrum pain due to EDS and also due to Bertolloti’s Syndrome (transitional 5th lumbar vertebra resulting in partial sacralization).
I started Diamox 4 days ago and am getting some headache relief. It’s still there, but it’s lighter. But yesterday I started getting this aching kind of burning pain in my sacrum on the right side (same side as the Bertolloti’s issue). I vaguely remember from prior CraniaSacral therapy that the dura runs through (or maybe connects?) in that area and it is all connected with the head, CSF, etc.
So my two questions are…
1. Has anyone else experience this with the Diamox?
2. What should I do next?
Thanks in advance for any guidance!
Jen
If it’s a new symptom, definitely let your doctor know and speak to them about it.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross