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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › off balance (dizzy)
Has anyone found away to help with dizziness not like the room is spinning but more like your off balanced ( like walking off a rocking boat). Or what could be causing this.
You know, dizziness was the only symptom that 100% of patients said they experienced with POTS! (and hence our phone number at POTS Care — 866-DIZZY-05 — lol). First, we look for signs of high (or low) intracranial pressure. Has anyone helped you with that?
Also check your vestibular mechanism.
If this is found to be involved, Cawthorne Cooksey exercises can help re-calibrate your brain
No who would I see for that
For vestibular dysfunction
I would have thought a Neurologist should be able to test for this, or specifically an Oto-neurologist, your GP/MD would know who to refer you to.
For raised intra-cranial pressure
One way is to have fundus photo’s taken of your eyes, the next time you have them tested at the opticians. Ask them to look for subtle signs of a swollen optic disk.
If you’ve had any MRI’s done, occasionally it shows it up with flattened back of eyes but this isn’t a common finding, so it’s not a reliable test.
Don’t accept a lumbar puncture to test for raised intra-cranial pressure, as it can trigger many more symptoms, see
Plus further info explaining the danger of Lumbar Puncture at:-
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