NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › "our favorites" suggestions
- This topic has 14 replies, 8 voices, and was last updated 10 years, 7 months ago by Anne.
June 18, 2011 at 1:00 pm #42bearcatParticipant
silk long johns and long sleeve tops- couldnt get through winter without them! here in the uk a v good company that makes them is “patra”
“arthritis gloves”- they keep your hands toasty warm and give a bit of support
xxgJune 24, 2011 at 7:23 pm #1247
Love that! On one of my videos I talked about how satin jammies combined with satin sheets. Talk about turning over in bed easily!
Love your suggestions, and I learned that I could go for DAYS without changing my clothes if I wore your idea of silk long johns.
And while we’re coping, a friend of mine going through chemo and I figured out that our hair WASHES ITSELF after 4 days. 🙂June 29, 2011 at 1:13 pm #1275mother1991Participant
I like my temperpedic mattress. No springs, coils ect to poke in any area and it is soft and very comfortable and I sleep good in it. My other thing is all cotton clothes, bedding ect. My other favorite is cotton tank or camisole bras. Easy to put on, good for layering, and no binding.July 4, 2011 at 11:11 pm #1286MGC.Participant
A feather pillow, with satin case. Cotton sheets.
I love working outside when I can, but have to make use of some stuff when it heats up. Old, soft tee shirts, wet with cold water helps. Frogg Toggs Chilly Pad helps as well.
GailJuly 10, 2011 at 12:20 am #1303
Hi mother1991, I had to chime in on the Tempurpedic mattress. Everytime I get into bed, I think “I love this mattress”! 🙂 I sprang for the adjustable bed, too. I got it when my hip was subluxated but no one figured out what was going on, so sleep was hard to come by. I would wake up every time I rolled over. But with the Tempurpedic, I didn’t need to roll over! The other benefit was that my husband could be doing cartwheels on his side of the bed and I wouldn’t feel a thing. I will NEVER again take a good night’s rest for granted. FOR SURE! 🙂July 10, 2011 at 12:22 am #1304
Hi MGC – Gail, Did you ever try the Chillow? It keeps your pillow cool. I just got mine, but haven’t tried it yet!July 13, 2011 at 5:52 pm #1314MaryInVaParticipant
I love my temperpedic mattress and pillow, my Relax-the-Back memory foam pillow (made for heads, but great between knees), ForeverCool pad (especially the big one) from Walgreens’, my starbuck’s insulated cup for cold/frozen drinks, my tiny 4″ fans, cotton clothes, my SAS “huggy” sandals and Reef unisex convertable sandals and my sage microwaveable neck wrap. -MaryAugust 2, 2011 at 1:57 pm #1371MGC.Participant
Dr D… so how has the Chillow worked out? I haven’t tried it. Is it something I need to add to my list?October 24, 2011 at 4:48 pm #1561
Dr D… so how has the Chillow worked out? I haven’t tried it. Is it something I need to add to my list?
I LOVE this Chillow! Funny, though, I don’t usually use it in my pillow! I put it under my chest and upper back. Remember, it needs to stay fairly flat, or else it will leak (yes, it looks like you wet the bed when that happens!) Ha.March 30, 2012 at 2:30 am #1921JeshyrParticipant
I love my waterbed!! I can set the temperature a touch lower than normal so I stay cool and don’t overheat and it is so flexible it cradles me! I have mine what the waterbed guys think of as a little bit under-filled so it’s more “cradling”. It’s unusual but fantastically comfortable.
And I have cups with handles and lids and straws so that when I tip them over (I always tip them over!) they don’t spill so much.May 10, 2012 at 12:59 pm #2152SweetFeatherParticipant
I just got a haircutting/stylist saddle stool to aid me in the kitchen. It is similar to the Kayline hi-rider and has a foot ring. It helps keep your back in proper alignment (as Esther Gokhale recommends.) I wish I could afford a Salli or Bambach saddle stool! But… this is very comfy and with a pneumatic lift it is easy for me to move quickly around the kitchen and to my dining table. I love it!August 19, 2012 at 9:40 am #2778
I read on another post that Dr. D. recommends soft cervical pillow. I had used this despite my chiropractor saying “Oh no, don’t do that, not recommended at all”. However, it DOES work if I wear it loosely – it follows my movements during the night and provides my cervicals support. If I don’t wear it, I find myself hanging off the edge of my pillow and almost afraid to move. It also keeps my clavicles from riding upwards which helps my shoulder pain.
I’ve also stopped trying to keep up with other people. Before I knew of the legitimacy of my problems, I tried to hike mountains and work as hard as others. Not happening. I now alternate 1 hour of physical activity with 1/2 hour passive work whenever I can. Thank goodness I’m organized! This is the first forum on which I’ve ever posted because I’m so grateful.August 20, 2012 at 10:10 am #2780
In my previous post, I said “soft cervical pillow” and I meant collar.September 1, 2012 at 8:20 pm #2837MJParticipant
And while we’re coping, a friend of mine going through chemo and I figured out that our hair WASHES ITSELF after 4 days. 🙂
LOL! I LOVE your sense of humour! And I am glad I am not the only one that has gone days without changing my clothes or washing my hair! At my lowest point (and it was LOW) I went several weeks, yes that right, several weeks (I won’t say how many) without washing my hair. After getting it together enough to wash my hair and go in for a cut, my hair dresser wanted to know my secret for my healthy hair LOL! I felt like saying, “just go BLANK weeks without washing your hair”.October 17, 2012 at 5:29 pm #3061
Hi mother1991, I had to chime in on the Tempurpedic mattress. Everytime I get into bed, I think “I love this mattress”! 🙂 I sprang for the adjustable bed, too. I got it when my hip was subluxated but no one figured out what was going on, so sleep was hard to come by. I would wake up every time I rolled over. But with the Tempurpedic, I didn’t need to roll over! The other benefit was that my husband could be doing cartwheels on his side of the bed and I wouldn’t feel a thing. I will NEVER again take a good night’s rest for granted. FOR SURE! 🙂
My hip is subluxed I’m certain. How did you get it adjusted? I went to two chiropractors and they couldn’t detect it. Their tests for leg length and muscle responses don’t work on me. I put a 15 pound weight on the femur along the ITB for a few minutes and that helped a little.
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