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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Pain in head, neck and shoulders.
I have had this for many years. I have always believed that the tightness in the neck and shoulders caused the head pain.
Hi there, This is a complete shot in the dark, not knowing you or your medical history, but I wonder… Have you had an MRI of your head/neck? MRV? Any indications of too much fluid in the subarachnoid space above the brain or a “squished” pituitary gland? Any stenoses of your veins? Any symptoms of hydrocephalus? (the “feeling of pressure”, dizziness, motion sickness, sensitivity to light, sound, motion?) If so, please discuss the possibility of hydrocephalus with your doctor and see if he/she will go with a trial of diamox (a pressure lowering medication). Watch for sulfur allergies… You will know the next day if you are responding. I have plenty of videos (and there are lots of discussions on this forum) about this. Just use the search functions, and let us know? Big hug…
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