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Here is a pic of a large neck vein that appears when I tilt my head back. I am SO excited, because maybe now the doctors will listen to me. This vein is also ‘activated’ when I do anything that hurts my neck; so basically everything I do lol (e.g brushing teeth, washing face, lifting something, walking, etc.) activates it.
I was POSITIVE I had vein issues in my head/neck, but could not prove it. So thank you to Dr. Diana, because I never would have thought to look for visible veins in my neck if it weren’t for her neck vein video (and looking in the mirror while tilting your head back, is not an easy thing to do lol!). I almost passed out after taking these pics!
Any comments or suggestions? Does this indicate CCSVI? Does anyone know which vein(s) this is (external jugular and perhaps branching off into internal jugular or other)?
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross