February 16, 2017 at 5:16 am #6114
Youtube blocked here, had to use this site for video file.
http://www.tudou.com/plcover/mksUoV5-rZA/?spm=a2h1s.8267934.LplayWrap.5~5~5!2~AFebruary 16, 2017 at 1:09 pm #6115
I see what you are saying but that’s relying on the integrity of the ligaments. Considering the type of injury, there’s a high possibility that some of your ligaments were torn in the accident. Have you checked for Occipital Condyle fractures on your scans? Did you have x-rays taken at the time of the accident ?February 16, 2017 at 1:47 pm #6117
I do have a collar you have mentioned, tried it for days, got a skin rush, so opted to lay down instead, lining with a small towel makes it too tight and suffocating…
I know what you mean, I got an annoying rash within a few days of wearing the collar but the eventual benefits FAR outweighed any teething problems. You need to get some ‘Coolmax’ liners for the Philadelphia collar (you’ll need a couple of pairs, as you have to wash them and the collar every single day, in order to keep your skin in good condition). You’ll see it will be worth it in the end, the progression will slow down and hopefully halt before you start regaining what you’ve lost.
It all takes time my friend but the body is an amazing piece of engineering, perpetually repairing itself – to the best of it’s ability, so if you give it appropriate nutrition and the physical support of the collar it’s got a much better chance.
I wish you all the best.February 16, 2017 at 5:30 pm #6119
Thanks for the Coolmax info, will give it a shot and let you know.
By the way, your neck might weaken due to long use of collars, is that a concern? Your syptoms sounds there might be fractures too, too many doctors just can’t see. In CT scans you need to set contrast in “bone window” to be able to see them, which seems not known. DICOM CT files are very important in studying them.
Could you provide more info on support in addition to a collar?
I didn’t have imaging taken right after the accident, no X-ray scans at all.February 19, 2017 at 2:31 pm #6120
The 3D CT scans are amazing aren’t they, they are certainly a great aid to diagnosis.
My main concern was surviving! With regard to neck muscles supposedly weakening when wearing a collar long term, I can say that in my experience (bearing in mind that I’ve worn this Philadelphia, so called ‘hard’ collar, 24/7 for nearly 10 years) I can say without a doubt that nothing is further from the truth. I remove it daily to either wash, shower or bathe and find I have good strong function of my neck muscles, I can easily hold my head firm without any difficulty or pain and, other than some rotation restriction I had as a result of the fall, can move my head easily in any direction.
Even within the collar you are still using many, if not all of your neck muscles, just not to the extremes you would use them otherwise. The collar will stop you from carrying out any sharp or compromising movement and, during times of sleep (when your muscles would normally relax anyway, leaving the integrity of your neck to your ligaments) you’ll find that they are protected from over-stretching too.
As long as you don’t ‘slouch’ in your collar, it will help maintain your head in good relationship to your spinal column and, aid the free flowing of your cerebro-spinal fluid between the two structures, this flow otherwise can become compromised, thus building up intracranial pressure and, thus either raising your blood pressure, or heartrate – as I said before, as your body tries to get oxygenated blood into your brain area.
Yes, I did suffer fractures and subluxations as well as CCI – all missed – as many are, if you do a google search, you’ll see the percentage missed is quite high! It’s been quite a struggle getting to the truth, I have to admit but, once you know what you are dealing with you can manage it a lot more effectively. It didn’t help that they put the wrong name on my x-ray and failed to give me a CT scan at the time.
The metal body brace I use, in addition to the Philadelphia collar at night, is called a ‘Johnson CTO’.
Having looked at a couple of your CT scan videos, I can clearly see what looks like an ‘Atlantoaxial Rotary Subluxation’February 19, 2017 at 4:59 pm #6121
The red lines show the lateral aspects of the cervical vertebrae. The purple circles show the lateral aspects of C1 – notice the lack of symmetry between the two sides. Looking at the other 3D CT scans, it’s clear there’s been a rotary shift of C1 on C2.
Having watched the video, if you keep your eye on the joint between C1 and C2, as it passes round, you can clearly see the slight forwards shift of C1 on C2 (on your left) and the more pronounced backwards shift of C1 on C2 (on your right), further confirming this.March 4, 2017 at 6:46 pm #6131
I have tried to show that the C1 – C2 joint is not ‘seated’ correctly. I haven’t quite captured the left view at the correct angle – but you get my gist.March 5, 2017 at 9:57 pm #6135
Thanks, other views are easier to see, but local doctors are still laughing about me, some even told me to seek mental care rather than seeing the fact that I am fighting to survive.March 6, 2017 at 5:03 am #6136
No Occipital Condyle fractures found, but petrous fracture close to right ICA were found.
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