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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Port for IV Infusions in EDS/POTS patient: Risks

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Port for IV Infusions in EDS/POTS patient: Risks

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  • February 19, 2013 at 3:51 pm #407
    abbilou
    Participant

    Does anyone know the added risks of doing a Port for a EDS POTS patient to receive IV hydration? My girl’s veins can not handle weekly IV therapy, so in order to continue we must consider a port and I’m truly struggling with the decision.

    She also has an enlarged aorta. Hydration therapy has been one of the only things that gives her some relief from symptoms. Her HR on her meds is at least 120 standing. Her BP on meds is still super low. She consumes 2 or more liters of electrolytes etc a day. She consumes insane amounts of sodium and wears constriction stockings. IV hydration has the most impact. But a port is really worrying me… Any insight?

    March 9, 2013 at 1:43 am #3542
    abbilou
    Participant

    No. The infusions are for the POTS. It’s a hydration therapy, but because of the EDS and POTS her veins can’t handle IV’s so she needs either a PICC line or PORT inserted to have more infusions

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