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Does anyone know the added risks of doing a Port for a EDS POTS patient to receive IV hydration? My girl’s veins can not handle weekly IV therapy, so in order to continue we must consider a port and I’m truly struggling with the decision.
She also has an enlarged aorta. Hydration therapy has been one of the only things that gives her some relief from symptoms. Her HR on her meds is at least 120 standing. Her BP on meds is still super low. She consumes 2 or more liters of electrolytes etc a day. She consumes insane amounts of sodium and wears constriction stockings. IV hydration has the most impact. But a port is really worrying me… Any insight?
No. The infusions are for the POTS. It’s a hydration therapy, but because of the EDS and POTS her veins can’t handle IV’s so she needs either a PICC line or PORT inserted to have more infusions
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