PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Possible POTS? Burning blood pooling hands

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Possible POTS? Burning blood pooling hands

Viewing 2 posts - 1 through 2 (of 2 total)
  • Author
    Posts
  • August 16, 2016 at 9:52 am #1035
    NYhope
    Participant

    Hello everyone,

    3 months ago I started experiencing extreme joint pain and blood pooling / burning in my hands. I then learned I had Lyme Disease. As the joint pain has slightly improved (doxycycline) the blood pooling is at a terrible state where I have to keep my hands elevated 24/7.

    They will start turning a red/maroon color within 3 seconds of lowering and purple after 20 seconds. This has become very debilitating and my doctor (lyme specialist) is confused. I also have extreme fatigue which could be the Lyme or POTs. Whenever I typed in my symptoms POT’s came up so I am assuming I have this. If anyone has any insight I would greatly appreciate it.

    Thank you


    After 4 seconds of lowering hands, pooling only happens at the palm side of hand.

    September 27, 2016 at 5:41 am #6021
    TrishyPops
    Participant

    Hi. I have this pooling in my hands, feet, upper arms and boobs. It came on at the same time as POTS and peripheral neuropathy. I also have EDS and was diagnosed years ago with ME/CFS.

  • Author
    Posts
Viewing 2 posts - 1 through 2 (of 2 total)
  • You must be logged in to reply to this topic.