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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Possible POTS? Burning blood pooling hands
3 months ago I started experiencing extreme joint pain and blood pooling / burning in my hands. I then learned I had Lyme Disease. As the joint pain has slightly improved (doxycycline) the blood pooling is at a terrible state where I have to keep my hands elevated 24/7.
They will start turning a red/maroon color within 3 seconds of lowering and purple after 20 seconds. This has become very debilitating and my doctor (lyme specialist) is confused. I also have extreme fatigue which could be the Lyme or POTs. Whenever I typed in my symptoms POT’s came up so I am assuming I have this. If anyone has any insight I would greatly appreciate it.
After 4 seconds of lowering hands, pooling only happens at the palm side of hand.
Hi. I have this pooling in my hands, feet, upper arms and boobs. It came on at the same time as POTS and peripheral neuropathy. I also have EDS and was diagnosed years ago with ME/CFS.
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