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3 months ago I started experiencing extreme joint pain and blood pooling / burning in my hands. I then learned I had Lyme Disease. As the joint pain has slightly improved (doxycycline) the blood pooling is at a terrible state where I have to keep my hands elevated 24/7.
They will start turning a red/maroon color within 3 seconds of lowering and purple after 20 seconds. This has become very debilitating and my doctor (lyme specialist) is confused. I also have extreme fatigue which could be the Lyme or POTs. Whenever I typed in my symptoms POT’s came up so I am assuming I have this. If anyone has any insight I would greatly appreciate it.
After 4 seconds of lowering hands, pooling only happens at the palm side of hand.
Hi. I have this pooling in my hands, feet, upper arms and boobs. It came on at the same time as POTS and peripheral neuropathy. I also have EDS and was diagnosed years ago with ME/CFS.
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