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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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POTS, EDS and Mass cell…oh my

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › POTS, EDS and Mass cell…oh my

  • This topic has 2 replies, 2 voices, and was last updated 10 years ago by heidi.
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  • March 5, 2013 at 2:46 am #411
    msnelson1994
    Participant

    I am new to this site….and I can’t sleep just trying to read and watch every video…thank you for your hard work…

    I have a question…my daughter has recently seen her Doctor and he has her on zantac/zyrtec protocol right now….but we have just been to her GI doctor and he has just put her on Lexapro…I understand this is to control the serotonin levels…my questions are these two thing working against each other or together?

    she is also on midodrine and a beta blocker….she has been struggling for two years now…we have seen every doctor around but there doesn’t seem to be the one doctor that can help us….what doctor would be a good doctor over see her care? Neurologist?

    She has been diagnosed with POTS and EDS joint hyper-mobility….but I feel there is more and she is struggling with her GI symptoms and it is impacting her quality of life…HELP

    March 6, 2013 at 9:48 pm #3535
    sadiehgt
    Participant

    Have you eliminated any foods or tried an elimination diet. I have these issues too and have gone gluten free and have actually not needed acid medication since going gluten free. I also stay away from high histamine foods because histamine is used to make acid in the stomach so reducing foods that are high in histamine helps. There are several websites with low histamine diets that are fairly good. The 7 deadly sins as a mastocytosis GI doc says are tomatoes, beef, pork, wheat, chocolate, onions, orange juice. Also egg whites are really high.

    March 8, 2013 at 12:39 am #3537
    heidi
    Participant

    I already know my allergies based on an IgE blood test; however, I found an amazing app for $3.99 for iPhones! You don’t have to know what your allergies are. Just need to document what you’ve eaten and your reactions. The thing I’ve noticed though, is that you can’t record symptoms that are “probably” from a chronic condition. Or the app will connect it to the food. It’s fine if they’re related to the food, but be careful not to make something look like an allergy, if it wasn’t related. My symptoms to a particular food come on within 2 hours, but this will show you patterns. http://www.foodallergydetective.com/ Check out the site for what the app can do! Very fascinating! I’m using the app to see which foods I’m challenging are affecting me.

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