- This topic has 1 reply, 1 voice, and was last updated 7 years, 8 months ago by .
- You must be logged in to reply to this topic.
Hello! I just recently went to see a specialist who treats POTS as my son was diagnosed over a year ago.
The doctor during the first appointment did a mini poor man’s tilt test and told me YES I do have POTS but would like me to come back for an official tilt table test followed by another one where they inject you with medicines. I find just the tilt table test is going to be a tough one on me. Medicine well my body rejects alot of it or has very horrible side effects from them so I am not overly comfortable with doing the part where they inject various medications to see how your heart reacts. Is this really necessary?
I am also suppose to go see a genesist as he feels I have EDS (stretchy skin, flexible joints)
What are your thoughts on the tilt table with injected medications?
I should be writing to the consultant to get more information, expressing my concerns, asking him what difference that type of testing (with the drug) makes to the diagnosis, ask him what amounts of what drugs are used and if it’s absolutely necessary. Also ask him how the body gets rid of the drug afterwards and what risks there are. At least, when he replies, you’ll be able to make a more informed decision and then have it in writing, so you’ll be able to investigate further, before you go.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross