February 7, 2016 at 5:37 pm #961
Hi. I have EDS, POTS and whole body neuropathic pain. I have dreadful IBS and food sensitivities. I have recently looked into the possibility of MCAS and histamine intolerance, no official diagnosis and no chance that my doctors in the UK will help me test for that.
I’ve changed my diet and four days ago started to take Hyoscine Hydrobromide and Ranitidine. Each day I’ve felt worse and today I had to stop taking it. I feel so weak, sick, my gut is on fire and I can’t go to the toilet. I was hoping that this combo would help, but I’m so unwell.
Would the supplement route be better?
Thanks in advance
TrishFebruary 10, 2016 at 10:15 am #5848Dr. DianaKeymaster
It is hard to say what is happening to you, but you may be able to tell by trying only one of these at a time. I know that Hyoscine Hydrobromide doesn’t make me feel good (although it can help prevent motion sickness when on a boat!). Because it is strongly anticholinergic, it may be working against you (so many of us need cholinergics). Let us know? 🙂February 11, 2016 at 9:24 am #5851
Hello Dr Driscoll.
Many thanks for your reply. I’m not really sure what would be the best course of treatment to aim for. I do believe that I have histamine/MCAS issues, with plenty of food and drug sensitivities. I have EDS, POTS, fairly strong autonomic dysfunction, IBS, gastroparesis, pressure in my head and eye issues (inc possible glaucoma). I don’t think my doctor will be of help it took so long to get diagnoses of EDS and POTS (54 and 55 years!). What can I take to help me? I am currently taking Quercetin and Mangosteen. I have ordered Parasym Plus and the digestive aids.
My cognitive function is getting far worse and I think chiropractor triggered the worst of the POTS symptoms back 4 years ago. I have a buffalo hump on my cervical spine (my head is pushed forward) and I wonder if that is implicated. Sometimes I feel like I have dementia, as my memory and concentration are really deteriorating.
I also have whole body neuropathic pain, which is intense burning.
Thanking you for your time and dedication.March 21, 2016 at 12:05 am #5909
I was wondering which antihistamines to go for? Which H1 and H2 are the best, bearing in mind I wouldn’t get referred to see anyone to prescribe these. I am also on Nortriptyline which I believe is an Antihistamine.
I really don’t know what else to do for myself.
I noted that the Parasym Plus has Acetyl L Carnitine in it, I have felt unwell in the past when taking this in conjunction with Alpha Lipoic Acid. It makes me feel sicklier with malaise, bad taste in mouthing generally well under par. I wonder why this is?
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