Reactive hypoglycemia, POTS, EDS, MCAS, complex migraines, Celiac

[sinverguenza]

I have reactive hypoglycemia/postprandial syndrome, POTS, EDS, MCAS, complex atypical migraines with transient aphasia, Celiac, Reynauds, idiopathic asthma/bronchospasm, idiopathic dystonia, a cortical lesion, osteopenia, occasional movement disorder (tremor/twitch, usually a migraine aura symptom), plus a few other things still being investigated (one of which is likely Chiari). My hypoglycemia flares AT THE SAME TIME as my MCAS flares (2-3 distinct periods a year)and my pain/subluxations increase, perhaps suggesting some underlying inflammatory condition that unites them all (beyond EDS)? I’ve noticed that the hypoglycemia and its severe, prolonged flushing (1.5-2 hour episodes) precede the onset of full MCAS flares by 2-3 weeks (and by full, I mean I will be reduced to anaphylaxing to all but a few foods and one type of water, despite Zantac, Zyrtec, Gastrocrom, and a fully compliant gluten free eating schedule for 4+ years after Celiac diagnosis). I don’t seem to have any underlying “true” IgE or IgA allergies(although I had a severe systemic mast cell reaction to skin prick allergy testing itself- when my blood pressure hit sky high while waiting for skin results, I was diagnosed with MCAS and told never to try allergy testing again). I’ve been worked up for most other things, including numerous Lupus, thyroid, MS, Lyme, carcinoid, etc assays, all of which have emerged negative. Anyone else have this constellation of symptoms? I can find very little research that unites postprandial syndrome and MCAS… and I’m tired of either passing out after eating (I’m in a sudden prolonged 1-2 hour semi-conscious state during episodes, “sleeping” where I can hear all around me but cannot respond and can also see dream-like images with conscious awareness of them and later recall) or anaphylaxing.

[Barbara]

Blimey, you’re in a right state! I’m sorry, I don’t have many of your problems but, suffice to say, you need as much help as you can get. I’m concerned about your level of nutrition because, if you don’t give your body the daily resources it needs, how can it repair itself.

I wonder how many of your allergies are due to low stomach acid, not digesting your food properly, so that undigested morsels get passed through the system, triggering the allergies. Low stomach acid also causes acid reflux, as the undigested material ‘ferments’ instead, in the stomach and the gas given off from this process, forces food and the little stomach acid you have, up into your eosophagus/throat. If so, you need to increase your salt, preferably iodised salt. Also I think you are grossly deplete of B vitamins, which help you produce energy, your stomach also needs this source of energy in order to ‘digest’, then hopefully it won’t put you to sleep!

If you can tolerate epsom salt baths (or footbaths), you need these regularly, as many internal processes need the magnesium (absorbable from this) in order to work properly – ours is usually depleted! This is a safe way to take it, as our body will only absorb what it needs
Hope some of this helps,
Barbara
(UK)

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