PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Recent upright MRI

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Recent upright MRI

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • March 2, 2015 at 3:24 pm #795
    seanos
    Participant

    I had an upright MRI last week and I got the radiologist report today. This is what he said:

    “At the cranio-cervical junction, whilst the clivo axial angle is reduced there is no evidence of basilar invagination or pressure on the brainstem by the odontoid
    peg. The degree of movement at the cranio-cervical junction is increased consistent with ligamentous laxity.
    The odontoid peg is central and the alar ligaments and cruciate ligaments appear to be intact.
    However when sitting relaxed and looking forward, there is approximately 5° of left lateral
    rotation of the atlas over the axis”

    I guess this means I have craniocervical instability. He says that there is no basilar invagination or pressure on the brainstem… but it looks like there is both in the pic attached. Can anyone please shed some light on this? It looks to me like Chiari 0 and it also looks like retroflexed odontoid and it looks like its very close to compressing the brain stem. I have asked for a second opinion but it might take a while.

    Thank you very much for your help in advance.

    Attached files

    March 4, 2015 at 12:20 pm #5332
    Dr. Diana
    Keymaster

    Hi, I don’t know if you have high intracranial pressure, but I wanted to comment that your MRI looks a lot like mine did. I was able to eliminate the symptoms of cervical instability by lowering my ICP with Diamox, thus eliminating my need for neck fusions (ditto with our kids). Could that be your situation, too?

    March 4, 2015 at 2:28 pm #5333
    seanos
    Participant

    Hi Dr Diana. Thanks very much for the reply. Sorry I should have said in the last post that the radiologist specifically said that there is no cervical spine instability. Yet each of the things he mentions above point to instability but he says my cranio-cervical junction is hypermobile. I would have thought it was the same. I don’t know…

    Thanks very much for the suggestion, I will certainly discuss this with my Dr. At this stage anything is worth a try. I can see it has helped a lot of people. I do feel a lot of pressure in my head/ears/eyes regularly along with the headaches, neck pain, tremors, tinnitus etc. I also have a lot of POTS type symptoms and l’hermittes, shooting pains, pins and needles etc. too and I’ve noticed lately that I have no gag reflex at all. There has to be something more than just “hypermobility” going on.

    Thanks again for the suggestion Dr. Diana.

  • Author
    Posts
Viewing 3 posts - 1 through 3 (of 3 total)
  • You must be logged in to reply to this topic.