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I know that skin is typically thin, stretchy, bruise prone in EDS, more so on classicl EDS, I just wondered does anyone get ‘petechiae’ or small dot type haemorrhages? If so what is the distribution? Just read you can get them in EDS, though it doesn’t say which type. I wondered if it was type IV. Not sure why EDS would make you prone except for more fragile skin and it more likely for capillaries to be damaged. Be interested to hear what people think…
Thank youI have petechiae, and I have classical EDS. I believe they’re mostly on my chest and abdomen. Now that I’m looking, I can see that they are not on my arms or my legs, which I did not realize.
MJHi MJ
Interesting. I have them on my arms, chest, abdomen and back. I don’t have them in great numbers but enough to notice. I thought they were cherry spots which are common, never even thought about them really until falling ill recently, and seeing signs of autoimmune disease. I have a couple on my right hand (infact same finger) one on my forehead, all of which came up today, and a few on my toes which seem to come and go (so may not be connected dont know). I guess I shall keep a close eye. Not sure if they are a function of autoimmune disease or EDS. They don’t blanch, which is not typical of the telangectasias seen in scleroderma, i think. Boundaries are blurred with these diseases. However vasculitus is an autoimmune disease, and if you have scleroderma or lupus for example, you are prone to others. I’m not sure if scleroderma leads to inflammation of vessels as such, say like in vasculitus, of which there are different types that affect different size blood vessels, but I guess the abnormal collagen must damage the vessels leading to small capillaries to burst. Scleroderma is a very complex condition I feel.Hi Henry. Interesting you brought up vasculitis. Dr. Diana believes I may have it. She thought this after looking at a pic and a video of my crazy veins. I can’t remember everything she said. I know she said CCSVI, vasculitis and something else. I have it in my notes somewhere. I wish she was a doctor so she could help us all even more. She certainly knows a lot more than the doctors. Perhaps you too have vasculitis?
I know that skin is typically thin, stretchy, bruise prone in EDS, more so on classicl EDS, I just wondered does anyone get ‘petechiae’ or small dot type haemorrhages? If so what is the distribution? Just read you can get them in EDS, though it doesn’t say which type. I wondered if it was type IV. Not sure why EDS would make you prone except for more fragile skin and it more likely for capillaries to be damaged. Be interested to hear what people think…
Thank youI have these, only on my thighs, they have been mentioned before in the forum, see the thread below for more info:-
http://prettyill.com/forums/viewthread/128/
All I know is, when I upped my Vit C, they seemed to reduce somewhat.
Regards
Barbara
(UK)Interesting point, Vasculitis, doesn’t that have beaded vessels as a factor ? Might they be beaded vessels, like those seen in many an EDS person’s fundus photo’s ? Or like the varicous veins, which many sufferes have, or the beaded lymph vessels that become blocked or sluggish (mentioned in Dr Raymond Perrins book on CFS/ME) causing poor lymph drainage ? Mmm . . . .
Regards
Barbara
(UK)
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