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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reoccurring Spontaneous CSF leaks

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Reoccurring Spontaneous CSF leaks

  • This topic has 1 reply, 1 voice, and was last updated 6 years, 10 months ago by Dr. Diana.
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  • April 7, 2016 at 8:59 am #997
    abull
    Participant

    I have had reoccurring spontaneous CSF leaks and have recently been diagnosed with EDS hyper mobility type.My brain is sagging they think from the leaks. When I ask if it is possible if I am producing too much fluid, I don’t feel like I am being taken very serious. I just purchased the Driscoll Theory and feel overwhelmed with encouragement. I am 43 now but, over the past 25 years I have repetitively been treated for migraines,tested for MS and autoimmune disorder, chronic fatigue and fibromyalgia. Unfortunately my four children are all showing signs of EDS too. Is there any studies I could participate in for the CSF? I am willing to drive. Is there a Neurosurgeon or Neuro spine specialist anyone recommends. I have been seeing someone at Vanderbilt. I have heard Mayo Clinic has helped EDS patients. Also, any thought on sermorelin or HGH?

    Thanks for any direction anyone could point my family.

    April 10, 2016 at 7:07 pm #5931
    Dr. Diana
    Keymaster

    I’m sorry we don’t have any studies going on currently. I hope the book is helpful — so many of us suffer with high intracranial pressure AND leaks. 🙁

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