PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reoccurring Spontaneous CSF leaks

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Reoccurring Spontaneous CSF leaks

Viewing 2 posts - 1 through 2 (of 2 total)
  • Author
    Posts
  • April 7, 2016 at 8:59 am #997
    abull
    Participant

    I have had reoccurring spontaneous CSF leaks and have recently been diagnosed with EDS hyper mobility type.My brain is sagging they think from the leaks. When I ask if it is possible if I am producing too much fluid, I don’t feel like I am being taken very serious. I just purchased the Driscoll Theory and feel overwhelmed with encouragement. I am 43 now but, over the past 25 years I have repetitively been treated for migraines,tested for MS and autoimmune disorder, chronic fatigue and fibromyalgia. Unfortunately my four children are all showing signs of EDS too. Is there any studies I could participate in for the CSF? I am willing to drive. Is there a Neurosurgeon or Neuro spine specialist anyone recommends. I have been seeing someone at Vanderbilt. I have heard Mayo Clinic has helped EDS patients. Also, any thought on sermorelin or HGH?

    Thanks for any direction anyone could point my family.

    April 10, 2016 at 7:07 pm #5931
    Dr. Diana
    Keymaster

    I’m sorry we don’t have any studies going on currently. I hope the book is helpful — so many of us suffer with high intracranial pressure AND leaks. 🙁

  • Author
    Posts
Viewing 2 posts - 1 through 2 (of 2 total)
  • You must be logged in to reply to this topic.