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Dr. D, could you please explain here (and /or on inspire) what I’d need tell my ophthalmologist to obtain retinal images like those in your talks on CCSVI? I’m going in for a long overdue screening on Friday and am hoping I might be able to obtain evidence to convince my medical team of the cranial pressure/CCSVI issue. I’ve had the sensation of pressure behind and above the outer half of my right eye for a year now; it’s different from my long term sinus issues, and it’s intensity correlates with my other weird eds-related dysautonomic problems. Thanks, kds
Dr. D, could you please explain here (and /or on inspire) what I’d need tell my ophthalmologist to obtain retinal images like those in your talks on CCSVI? I’m going in for a long overdue screening on Friday and am hoping I might be able to obtain evidence to convince my medical team of the cranial pressure/CCSVI issue. I’ve had the sensation of pressure behind and above the outer half of my right eye for a year now; it’s different from my long term sinus issues, and it’s intensity correlates with my other weird eds-related dysautonomic problems. Thanks, kds
Hi Kdsd, The study isn’t complete yet, so I am “blinded” to the results. do you have EDS or MS or both? The few examples that I covered in my talks are from the optos mapping system. Any (expensive -ha) fundus camera that allows the user to magnify the image a great deal should work. The trick is knowing what to look for. You can show your doc the pics from my talk, but it may take a little training to “see” it. Basically, any evidence of an abnormal A/V ratio, beaded veins, attenuated arterioles or the appearance of an elderly patient with ateriosclerosis is the basic idea. The study will be coming out soon, and that will help! Thanks so much — and will you let us know how yours looks? Thanks! Diana
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