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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Retinoschisis

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Retinoschisis

  • This topic has 2 replies, 2 voices, and was last updated 10 years, 10 months ago by SweetFeather.
Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • April 1, 2012 at 7:24 pm #151
    samiamisme
    Participant

    Hi Dr. D. and everyone.

    I was curious to know if anyone has heard of a link between retinoschisis and ehlers danlos? My neice is going into the airforce pilot program and they just sent her through her physical. During this, they discovered she has this eye issue and I’m wondering if it could be linked to EDS? She is 21 and never had any symptoms until now. They also said she’s colorblind, which she didn’t know. They are trying to find her a retina specialist to determine the depth of this problem and what course of action she’ll need. I have been diagnosed with EDS classic and hypermobile types. I am still trying to figure out which side of the family it comes from. My niece exhibits some hypermobile characteristics as well, but does not adversely affect her thus far. My paternal grandfather had a detached retina but he was in his 70’s. So I’m just curious if there could be a connection between her eye problem and EDS.

    Thank you for all your thoughts.

    Sherri

    April 9, 2012 at 11:32 pm #1977
    Dr. Diana
    Keymaster

    Hi Dr. D. and everyone.

    I was curious to know if anyone has heard of a link between retinoschisis and ehlers danlos? My neice is going into the airforce pilot program and they just sent her through her physical. During this, they discovered she has this eye issue and I’m wondering if it could be linked to EDS? She is 21 and never had any symptoms until now. They also said she’s colorblind, which she didn’t know. They are trying to find her a retina specialist to determine the depth of this problem and what course of action she’ll need. I have been diagnosed with EDS classic and hypermobile types. I am still trying to figure out which side of the family it comes from. My niece exhibits some hypermobile characteristics as well, but does not adversely affect her thus far. My paternal grandfather had a detached retina but he was in his 70’s. So I’m just curious if there could be a connection between her eye problem and EDS.

    Thank you for all your thoughts.

    Sherri

    Hi Sherri, There are no studies that I’m aware of linking EDS to retinoschisis, but it doesn’t mean there IS no link, of course. This is why forums like these can be of such help. I will mention, though, that retinoschisis is fairly common in the general population, though. Now, color blindness is NOT AT ALL common in females! Do you know what type of color blindness she has? That may be a clue… Hmmm… Is she very near-sighted? I’ll be curious to see if anyone else reports retinoschisis… 🙂 Diana

    June 7, 2012 at 4:40 pm #2361
    SweetFeather
    Participant

    Sherri, I’m sorry to hear about your daughter’s eye problems. One of my sons is color-blind and in the Navy. Many of the jobs were unavailable to him because of being color-blind. His vision is better than 20-20. He is the only one of my five kids who does not seem to have EDS (but he does have an odd stretch mark by his armpit and he’s never been overweight… ) He has a brother who wanted to go into the military but wasn’t able due to asthma and his subluxing knee problem. My best, SweetFeather

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