• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

retroflexed adontoid

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › retroflexed adontoid

  • This topic is empty.
Viewing 1 post (of 1 total)
  • Author
    Posts
  • April 24, 2014 at 12:18 am #695
    decompressed
    Participant

    Sorry, originally posted on wrong board…..Anyone with experience with a retroflexed odontoid who can give some advice…(most recent MRI pic attached).
    …I had decompression surgery in Nov 2011 for a 9mm herniation. In the last few months I’ve had severe head aches, dizziness, palpatations, swallowing issues/choking, non-stop ringing in my ears, insomnia, to name a few. Additionally neck pain and minimal range of motion. This part never really got better, but I also have disc herniations/degeneration at c5/6 and 6/7. The neck pain has been really significant and never pain has gone from primarily bicep area to the entire arms…frequently going completely numb doing simple stuff.
    I went back to see my nuero surgeon who said that my symptoms were not chiari related because he had successfully decompressed around the tonsils. I’d been researching prior to my visit and noticed the retroflexed odontoid and when I saw a picture I thought it look similar to mine. (Not near as severe as I have seen some) but I am wondering if that might answer some of my symptoms.
    When I asked my NS about it, he initially said mine looked “perfect”. Then later said that mine is not as bad as some and most of the time those that are problematic cause a significant kink.
    At any rate, slightly frustrated and just trying to learn. I think I am going to send my records off to the Chiari Institute to see what they think of the MRI’s and symptoms also.
    Thanks in advance!
    Take care,
    T

    Attached files

  • Author
    Posts
Viewing 1 post (of 1 total)
  • You must be logged in to reply to this topic.
Log In

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020