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Sorry, originally posted on wrong board…..Anyone with experience with a retroflexed odontoid who can give some advice…(most recent MRI pic attached).
…I had decompression surgery in Nov 2011 for a 9mm herniation. In the last few months I’ve had severe head aches, dizziness, palpatations, swallowing issues/choking, non-stop ringing in my ears, insomnia, to name a few. Additionally neck pain and minimal range of motion. This part never really got better, but I also have disc herniations/degeneration at c5/6 and 6/7. The neck pain has been really significant and never pain has gone from primarily bicep area to the entire arms…frequently going completely numb doing simple stuff.
I went back to see my nuero surgeon who said that my symptoms were not chiari related because he had successfully decompressed around the tonsils. I’d been researching prior to my visit and noticed the retroflexed odontoid and when I saw a picture I thought it look similar to mine. (Not near as severe as I have seen some) but I am wondering if that might answer some of my symptoms.
When I asked my NS about it, he initially said mine looked “perfect”. Then later said that mine is not as bad as some and most of the time those that are problematic cause a significant kink.
At any rate, slightly frustrated and just trying to learn. I think I am going to send my records off to the Chiari Institute to see what they think of the MRI’s and symptoms also.
Thanks in advance!
Take care,
T
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