- This topic has 2 replies, 2 voices, and was last updated 9 years, 10 months ago by .
- You must be logged in to reply to this topic.
Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
I am awaiting an appointment to look at my intolerance to food, but just wondered whether anyone else was intolerant to smells? When I smell garlic, curry, spices, and my husbands aftershave – though not when sprayed on him. My tongue starts to tingle and feels as though it is swelling a bit. It can also affect my throat and has recently started to affect my lips and cheek. I have been hypersensitive to smells for a long time but only recently had this changed. I don’t even have to be in the same room.
Hi JJ. I also am hypersensitive to smells and have been for as long as I can remember. Often, I get headaches or migraines b/c of perfume, smoke (even the smell of smoked cold-cuts!), vinyl, new leather, rubber, glue, and so many other things. I’ve also felt my lips and tongue start to tingle and a few times my throat has felt swollen during my strange ‘neurological episodes’ but this almost always happens when my blood pressure is extremely low. Maybe our hypersensitivity to scents is related to mast cell activation?
I have problems with smells too. I am a super smeller and a super taster. I guess it is an EDS thing.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross