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Hello dr diana,sorry for the poor language. I am 23 years old,that diagnosed 1 year ago with eds type 3. I used to working out until the neck and back started doing problems. I had mononucleosis 3 monthes ago,and for 1.5 month i feel tingling all over body,pain in the elbows and fingers (the two sides of the body) and allodynia. My blood test is ok (no RA or lupus) and than i discovered the ms and eds theory,beside the ebv that known make ms. Neurology test was ok for two times but im not sure. The doctors dont know a lot about eds here,and sure not about the connect with ms.should i do mri for the brain even the doctors dont think that is ms? The eds and mononucleosis are not making me so relax…
Hi Dor, Although I can’t tell you whether your doctors should check you for MS, I will tell you that many of us have symptoms similar to MS (I know I did), and we included MS patients in most of our studies over the past decade. I saw many overlapping presentations in many of us. It can be great to get that evaluated, and off the table (hopefully). A brain MRI will usually do it. If we have EDS or other connective tissue disorders, a lumbar puncture is usually discouraged because we can develop spinal leaks after the puncture. Please keep us posted, and know you are not alone…
Hi diana,thank you so much for the quick answer. I though that all my symptoms can be from cfs,that come after mononucleosis-am i right? and if it is (hopefully), what are the risk for someone with eds type 3 and history of mononucleosis to devlope ms and if should i go to a doctor each half year or a year to pool test?
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
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