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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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so worried… ms after mononucleosis

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › so worried… ms after mononucleosis

  • This topic has 2 replies, 2 voices, and was last updated 6 years, 3 months ago by dor1993.
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  • December 23, 2016 at 11:17 am #1068
    dor1993
    Participant

    Hello dr diana,sorry for the poor language. I am 23 years old,that diagnosed 1 year ago with eds type 3. I used to working out until the neck and back started doing problems. I had mononucleosis 3 monthes ago,and for 1.5 month i feel tingling all over body,pain in the elbows and fingers (the two sides of the body) and allodynia. My blood test is ok (no RA or lupus) and than i discovered the ms and eds theory,beside the ebv that known make ms. Neurology test was ok for two times but im not sure. The doctors dont know a lot about eds here,and sure not about the connect with ms.should i do mri for the brain even the doctors dont think that is ms? The eds and mononucleosis are not making me so relax…

    December 23, 2016 at 12:44 pm #6058
    Dr. Diana
    Keymaster

    Hi Dor, Although I can’t tell you whether your doctors should check you for MS, I will tell you that many of us have symptoms similar to MS (I know I did), and we included MS patients in most of our studies over the past decade. I saw many overlapping presentations in many of us. It can be great to get that evaluated, and off the table (hopefully). A brain MRI will usually do it. If we have EDS or other connective tissue disorders, a lumbar puncture is usually discouraged because we can develop spinal leaks after the puncture. Please keep us posted, and know you are not alone…

    December 23, 2016 at 1:36 pm #6059
    dor1993
    Participant

    Hi diana,thank you so much for the quick answer. I though that all my symptoms can be from cfs,that come after mononucleosis-am i right? and if it is (hopefully), what are the risk for someone with eds type 3 and history of mononucleosis to devlope ms and if should i go to a doctor each half year or a year to pool test?

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