- This topic has 1 reply, 1 voice, and was last updated 9 years, 1 month ago by .
- You must be logged in to reply to this topic.
Hello! My son has POTS as well as peanut allergy, cold urticaria, cold air asthma and horrible reactions to vaccinations.
He just started high school. We both have to get up at 6:00am so he can catch the bus at 7:00. I drive him to the bus stop because the bus stop is no where near our house. We live in Canada so the cold weather is pretty bad.
I have sent in a doctors note about getting the bus stop moved but have a feeling they just do not get it that he cannot walk that sort of distance to the bus stop for various medical reasons. (almost a mile walk to a cross roads, not even a bus stop just an open road, no where to sit, no shelter nothing to protect from the humidity of the warmer weather or the cold from the winter)
Am I being unreasonable? (should I expect him to walk it; approx 15-20mins walk)
With sending a doctors note if something does go wrong is it not a huge liability on their end?
Your son’s health and well-being come first.
Get it written down, how it makes him feel, having to walk that distance and stand and wait in the cold, get him to be explicit. Any heart fluctuations, muscle/joint pains, limb weaknesses, circulatory issues (numbness, tingling, painful cold extremities, etc), autonomic issues (fast heart-rate, poor temperature control, inappropriate fluctuations in blood pressure, inappropriate sweating, etc), any respiratory issues, brain issues (brain fog, confusion, lightheadedness), check out Dr Diana’s symptoms checklist and ask him which, if any, he experiences and at what points in his journey. I would also mention the fact that he’s more vulnerable than most, due to his restrictions.
I’m sorry, I don’t understand how the authorities work over there. Is there no-one who could act as an advocate, say a childrens group, or a charity, or a government disability department, or something – you need voice-power.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross