- This topic has 1 reply, 1 voice, and was last updated 8 years, 10 months ago by .
- You must be logged in to reply to this topic.
For those interested in the science bit, I’ve just seen this Dec 2013 study on ChiariConnectionInternational, posted by Sandy (a very good educator!).
I found it intriguing, it examines how CSF flow is influenced by deep breathing in and deep breathing out, using MRI imaging to capture the flow direction. The study subjects are then asked to hold their breath, so that the only influence is their blood pulsing, to see what happens then. There are 3 .wmv movie files at the end of the study, showing the CSF flow.
I don’t know about you all, but I can FEEL the change in pressure, too! And it is positional, which discombobulates most doctors. Oh, I don’t have Chiari, but have high intracrancial pressure, controlled with Diamox. Thanks Barb! 😉
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross