- This topic has 1 reply, 1 voice, and was last updated 7 years, 4 months ago by .
- You must be logged in to reply to this topic.
How many of you have rib issues? Here is a short youtube video on how my ribs are faring lately:
Anyone else have similar symptoms? Share you stories here.
Truth be told, I am not just winging it in my attempts to improve the state of affairs in my ribs. I recently consulted with Jerry Hesch, a highly knowledgeable and competent physical therapist located in Aurora, Colorado. I look forward to sharing the results of my experiments in the coming weeks.
Jerry has also been a remarkable source of input in my efforts to stabilize an unstable pubic joint that resulted from a pelvic injury during childbirth over 25 years ago. Yes, I have endured pain this many years because I long ago gave up on the idea of getting any help from a doctor. I am sure many of you can relate to this state of learned helplessness that is common after uncommon EDS-related injuries.
Jerry is the first person I have met who has been able to help me drag myself out of the pit of “what’s the point.” After getting an assessment and treatment plan from Jerry a couple of weeks ago, I am now both curious and hopeful that I can improve the quality of my physical health even if I can’t eliminate the underlying disorder.
I am happy to report that I am making noticeable progress as of week three. I’ll post more about the details after a few more weeks of applying an SI belt at the level of the pubic joint. I’m also looking forward to sharing the results of my rib experiments.
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross