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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › Sunday Night is Rib Night in Ehlers Danlos Syndrome Land
How many of you have rib issues? Here is a short youtube video on how my ribs are faring lately:
Rib Cage Issues in Ehlers Danlos Syndrome Hypermobility Type
Anyone else have similar symptoms? Share you stories here.
Truth be told, I am not just winging it in my attempts to improve the state of affairs in my ribs. I recently consulted with Jerry Hesch, a highly knowledgeable and competent physical therapist located in Aurora, Colorado. I look forward to sharing the results of my experiments in the coming weeks.
Jerry has also been a remarkable source of input in my efforts to stabilize an unstable pubic joint that resulted from a pelvic injury during childbirth over 25 years ago. Yes, I have endured pain this many years because I long ago gave up on the idea of getting any help from a doctor. I am sure many of you can relate to this state of learned helplessness that is common after uncommon EDS-related injuries.
Jerry is the first person I have met who has been able to help me drag myself out of the pit of “what’s the point.” After getting an assessment and treatment plan from Jerry a couple of weeks ago, I am now both curious and hopeful that I can improve the quality of my physical health even if I can’t eliminate the underlying disorder.
I am happy to report that I am making noticeable progress as of week three. I’ll post more about the details after a few more weeks of applying an SI belt at the level of the pubic joint. I’m also looking forward to sharing the results of my rib experiments.
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross