May 17, 2012 at 12:34 pm #187stryderslist2Participant
I know that this isn’t the place to put this and I’m probably opening a can of works but…
Someone posted about the Driscoll Theory on the EDNF Facebook page and of course I put my two cents in because they were sharing the PDF and I recommended that people pay for it instead and help support the cause. Well, it’s turned into a HUGE discussion with mostly me and Mark. I am trying to hard to support and all I hear is “There is no proof!” My point is, how do you get proof unless we get proof, people like me willing to try AND it works….
Ugggh, I should stop before I get myself banned. I’m trying Dr. D, but it feels like what they say is the end all be all and it drives me crazy. They are not raising money for research and yet they constantly say we need to research.May 19, 2012 at 1:00 pm #2184PalominoMorganParticipant
Don’t worry about getting banned here. I left Expired for similar reasons. Nobody is willing to have an honest discussion about so many topics that it does get very frustrating.
As for the EDNF board… Let’s just say I’m NOT surprised. There are some (well, at least 1) very vocal anti-Driscoll Board member. God forbid someone else discover something that might help us. People are too concerned about their own egos to truly see who they are hurting…. us.May 24, 2012 at 10:51 am #2199ourfullhouseParticipant
This is happening with CCSVI research and treatment right now too. The FDA got involved (prompted by big pharma perhaps???) and sent out a “warning” of the dangers and how some of the studies, such as the Hubbard IRB, had to be shut down. So sad. The backlash is that now insurance companies won’t pay for the procedure for anyone with an MS DX, and possibly others as this goes on. Oh, they’ll pay to do the same procedure on arteries, but veins are no mans land. ARGH!
I have a good friend who was scheduled to have his 2nd CCSVI procedure (over a year since his first… more of a tune up) last week, who has MS and this FDA thing happened and his insurance suddenly wouldn’t pay for it, so it was cancelled. So frustrating!
All that to say naysayers are going to continue to make waves and we have to just keep plugging away at the research and PROVE them wrong. 😉
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