September 2, 2012 at 3:45 pm #300qanikParticipant
Wondering if anyone gets this- I seem to go most days with all the other wonderful symptoms and then Ill notice every week or so I have a day or so where everything is completely out of whack and I am very tired. I try to lay down when I can and I notice that I void huge amounts of urine. Like 3 liters in a day. ( my last 24 hour urine was 2,900cc) I cant even take a nap because I have to go every 30 minutes or so. I have checked my sugars and I am not diabetic. By the time this is over I ususally feel a bit better and then its over until a few more days?
BrentSeptember 3, 2012 at 12:23 pm #2867MJParticipant
I went through that in the late 90’s when I still working. One time I had to excuse myself from a 1 hour meeting 3 times to go the washroom!!! How embarassing. I’m sorry, I don’t have any insight into the cause or relief, but I just wanted you to know that I’ve been there too.
MJSeptember 4, 2012 at 8:45 am #2872Give My Daughter the Shot!Participant
I’ve not experienced the same delineation as you describe since I’ve not ‘bounced back’ but continued on a notable decline. I have, however, experienced your symptoms along the way. I remember thinking (for more than one ‘red flag symptom’), ‘that’s impossible, I’m not diabetic’. Yes, the excessive urination confused the heck out of me. I remember thinking that it was strange since I hadn’t taken in nearly the fluids to have to ‘go’ the way I was. At the time, I chalked it up to – well, that’s ok, at least I’m hydrated. Yes, I’ve nearly killed myself trying to ‘blow off’ these horrific issues but they’ve overtaken my life so horribly that I now do myself more harm than good to attempt the delusional way out.
I am perpetually exhausted almost to death for years now. I am not sure how that correlates with the excessive urination. I don’t experience the outrageous amount of output every day. The exhaustion is suffocating. It isn’t every day, however, that I roll off the couch and onto the floor because I just cannot sit up anymore. I did that right in front of my dad (which I would never do) because I didn’t even have the energy to ask him to move off the couch because I desperately needed to not have to sit up anymore. I guess that since this doesn’t happen everyday, maybe I am worse with exhaustion sometimes?? It’s all a gasping, panting, staggering, brain foggy blur.
I’m going to pay closer attention now that you’ve mentioned, to see if there is comorbidity. I had recently noticed that my bloodwork has been, repetitively, far off of normal for at least the last couple of years (I don’t have labs from further back than that) and nobody ever told me. All red blood cell counts have been off – even way off. Same with eosinophils and other white blood cells. Sometimes nearly 3 times what the max level is supposed to be. I am only a lay person who isn’t a big fan of medical stuff – always responsibly taken proper medical/dental care of myself but never interested in blood, guts, veins, etc. Just live and let live for me – thanks. Anyway, do you think it has something to do with liver/kidney function? Some of my bloodwork (not consistently) appears to indicate that there may be a problem for me in that arena. Oh, now I live in a diff area where the medical care is, overall, far far worse than any nightmare I could ever have. I don’t see myself as being able to ‘solve this mystery’ but do appreciate your sharing it.
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