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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Tachycardia—need answer about beta blocker

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Cardiology › Tachycardia—need answer about beta blocker

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  • June 11, 2013 at 1:59 pm #461
    Ashton7987
    Participant

    I have EDS, POTS, MVP, and MCAS. I was wondering why they say you should not be on beta blockers while on cromolyn. I was taken off propranolol to go on cromolyn however my heart rate has been very high so I was put back on propanolol 10 mg. twice a day. I need to know if there is any other alternatives and what the risks are of staying on a low dose of propranolol. Please help!!! 🙂

    June 19, 2013 at 10:59 am #3787
    qanik
    Participant

    I too carry the same 3 diagnosis as you. I also take a beta blocker ( bisoprolol 5mg every day)

    Beta Blockers trigger degranulation of the mast cell and also plays a role in the pathway of epi release when needed for anaphylxis. Sometimes Glucagon is needed as well as epi if an allergic reaction becomes bad and you are on a beta blocker. Its actually much more complicated than that but ill leave it at that.

    AS well as the EDS I have hyper pots and have trouble with epi/nor epi surges and wild BP and heart rate swings. I have tried a plethora of meds, Calcium channel blockers, clonidine, and 5 other beta blockers before we settled on the bisoprolol. The docs I saw at mayo and my dysautnomia doc that the benefits outweighed the risk. I am for the most part very well heart rate and BP controlled and the surges are few and far between now. I know some of the folks I have seen want me off the beta blocker for the MCAS but at this point I am staying on the little bit.
    I have so many other things going on ( neck pain, head aches,multiple dislocations, sleep issues, horrible GI issues) currently that the beta blocker issue is one I am leaving alone.

    Hope that helped
    Brent

    June 20, 2013 at 11:37 am #3795
    Dr. Diana
    Keymaster

    I know of a patient with your diagnoses who cannot live without her propranolol! I think if you need a beta-blocker, propranolol is the least likely to be problematic (it’s half life is very short). If it helps you, I wouldn’t worry too much about the mast cell reaction. Be happy that you have something that works for you! 😉

    June 26, 2013 at 9:33 pm #3829
    Ashton7987
    Participant

    Thank you both for the responses. This makes me feel better! I am back on a low dose of propranolol and feel like I’m no longer dying. 🙂

    June 26, 2013 at 10:47 pm #3831
    Dr. Diana
    Keymaster

    It’s kind of funny to know that a “good day” for us is one where we no longer feel “like we’re dying”! 😉 That’s great news!

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