August 26, 2011 at 12:42 pm #57
Trying this because I spend 30 min typing up my intro and it discarded it as spam :(… I will try again in another post soon. TraceyAugust 26, 2011 at 3:06 pm #1408
Im trying to post an intro so I can meet everyone… its kicking it out as spam. Any thoughts as to what Im doing incorrectly!….?August 26, 2011 at 3:15 pm #1409emParticipant
Hi Tracey and welcome. I have no magical administrative powers–plain old poster here. I can see the test post and the reply though, if that’s helpful to know.August 27, 2011 at 7:04 pm #1411
I see everyone’s posts, for some reason when I post a lengthy post telling about myself it discounts it as spam…. I will try in segments perhaps. 🙂August 27, 2011 at 9:17 pm #1412jesslynnParticipant
I’m having the same problem, I think I will try segments also. I think
it gets rejected at a certain length. Its very frustrating when you spend so much time typing
to share the facts, in case someone has a similar experience, or answers. JessicaAugust 28, 2011 at 9:40 am #1415
I think its the length or something else we may be typing that is kicking it out. When I look at the character numbers, IM well below the 6000….maybe there is a server issue.. not sure..will keep trying…TAugust 28, 2011 at 9:42 am #1416BethParticipant
Hi Tracy and Jesslynn!
I am very interested in what you both have to share – but as a poster I have no administrative knowledge. I am sure Dr. D will be along and try to fix whatever bug is causing the problem. Being ill herself and so busy helping so many, it may take a bit of time before she pops in.
In the meantime, do try to post your stories in segments (copy whatever you type so you don’t lose the whole post into cyberspace!).
Tracy, I just saw another one of your posts regarding diamox on the ednf forum that listed your symptoms. Gosh, you sound so much like my daughter! I replied to the other post you wrote, but when I saw you here again, I just had to comment. That constellation of symptoms seems so obvious to me, wish it were as obvious to the docs!
I believe that there will soon be a body of knowledge regarding elevated brain pressure causing neurological symptoms in EDS patients and a real treatment option. We just have to get the docs to see it!
Anyway, hope you both take another chance and post more! Welcome!September 6, 2011 at 6:33 pm #1443Dr. DianaKeymaster
Im trying to post an intro so I can meet everyone… its kicking it out as spam. Any thoughts as to what Im doing incorrectly!….?
Hi Sweetie, Well obviously, you broke our forum. HA! No, it’s not you. We’re changing the spam filter and it’s giving us some fits. I’m so sorry. We should have it fixed soon!! 🙂
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