April 28, 2012 at 1:39 pm #173
I just wanted to express my thanks to Dr. D for sharing all of her knowledge, particularly about mast cell disease (in this particular situation). My daughter just had an emergency appendectomy and, while it was a very scary ordeal, I hate to think what she might have endured if she was not already on zyrtec and zantac and if I hadn’t known what to discuss with the anesthesiologist before surgery.
Because Dr. D has so generously shared her knowledge with all of us, my daughter’s life was made immeasurably easier through this surgery and I don’t think it is an exaggeration to say that her life might even have been saved because of this knowledge.
So, thank you Dr. Diana – your work is so important to kids like my daughter. Bless you and just know how much you are appreciated!
BethApril 28, 2012 at 8:39 pm #2072PalominoMorganParticipant
Ditto. I don’t know how she does all she does, but am guessing she is running on pure passion. Sad that some are intimidated by her research, but hopefully one day they will HAVE to recognize her work. Many other diseases and highly educated docs already have.April 29, 2012 at 2:04 am #2075MattiesMomParticipant
Beth, I hope your daughter recovers quickly from her surgery. I am glad to have found Dr. Diana and her research, I believe from your blog that I was fortunate to have stumbled upon. 😉
I depend on Diamox now, and my Z/Z combo. I have had days where I had to cut back on Diamox, (I was taking it more than originally prescribed, so pharmacy wouldn’t refill early, but we have sorted that out) and I realized just how much more miserable I was without it.
I NEED hope in my life, for both myself and my especially my daughter.
I feel like I am one of the lucky ones to be here now, to benefit from Dr. Diana’s knowledge and her willingness to share it with others.April 29, 2012 at 11:37 am #2076
Yup, that was my blog that pointed you here. I am glad you found relief with the treatment options Dr. D suggests. I hate to even consider where my daughter would be without Dr. D’s ‘theory’ – it doesn’t even bear thinking about! I know what you mean about having hope. When I found the Driscoll Theory, I had hope for the first time in many months. I feel compelled to share that hope whenever and wherever I can – on my blog, on Inspire, or anywhere there is an EDSer who could benefit. I feel so lucky to have found this information and I would be wrong to keep it to myself.
Thanks for the kind wishes – my daughter is recovering nicely. I think I can finally breathe again!
BethApril 29, 2012 at 11:41 am #2077
A question – for Dr. D or anyone else who might be able to answer…
Could mast cell disease attack the appendix? The surgeon told us my daughter’s appendix was gangrenous and huge, although fortunately it was not perforated. I was just curious if there could be any connection at all to mast cell disease or if this was just a random thing that occurred.
BethApril 29, 2012 at 8:13 pm #2078PalominoMorganParticipantApril 30, 2012 at 2:45 pm #2090
I found that first link and some others when I did my own search after asking my question. I think it is entirely possible that there was mast cell involvement in my daughter’s appendicitis but I suppose I will never know for sure.
Very interesting stuff though,thanks!
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